My new birthday!

Saturday, 09.03.2019

Hello my dears,

I’m writing to you just from the isolation, in which I am now for about a week. Everything went smoothly, my new stem cells are transplanted and this morning my leucocyte value was 0.1%! This means that the old immune system has now gone to Nirvana and my new life begins. Or to talk to Dr. Federenkos words at noon today to say: “o, 1%, your immune system is completly dead now – congratulation!” 🙂 Hahaaa, that’s what I call a meaningful sense of humor!

What did I have a nice stem cell birthday! This clinic here and the people I share this trip with are wonderful. It’s not just a clinic, it’s almost like a guru camp with infusions. 😉

 

March 6, 2019: My Stem Cell Birthday!

At first, Dr. I gave a speech to Federenko, which I have incorporated here as a video and translated, because the Russian accent and the sound altogether might otherwise be difficult to understand.

Then he infected me as usual in this clinic a badge with the flower Iris and also said a few words that I set you as a video and text.

As another tradition, I have recorded the pouring of the MS, also here again a video and pictures. The ritual is repeated three times, symbolically – to disperse the MS in liquid nitrogen (I think the autologous stem cells were kept here and this now symbolizes the process of separation).

And then there are pictures of the party and the beautiful cake that I baked – based on my Russian Matroyshka, whose backstory I wanted to tell you too. This again in the video and with pictures and text.

Have fun! And you will get to Dr. Recognize the importance of YOU in my healing process! It’s just not just this treatment, but the positive energy and support of loving people in life. And you are so many and you are so authentic in it and that gives me so much power. That’s why I’m so happy. Deepheart-Thankyou very much !!

 

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Original in Englisch:

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We had six successful transplantation today, but some of our friends are tired and change their decision to make the celebration tomorrow.
To be honest, everybody is okay, no problems and no side affects.

But Katja is the strongest one. From the beginning she admitted to hospital I saw her only smile. Only high level motivation. Only energy to fight Multiple Sclerosis. No doubts! No doubts at all. Maybe I had doubts, but you…. no!

me:(What you had doubts, why?)

So we are the team, we work in proporation. And sometimes medical team needs your support. When we are tired, when we exhausted, when we have stops to go ahead, to make decision about difficult medical situation – we need your support. You also need our support.
You/we need your family, your children, your parents, your husbands, your wifes – Support!

It is impossible to fight Multiple Sclerosis only using transplantation. You can fight MS only, if we are the team and when we combine the transplantation with our energy.
If it’s pain: lots of power, energy from our brain and heart and: kill the monster! Mentally using all our energy, motivation and of course synthetic based high dosed chemo therapy.
And of course day 0 – this is like a birthday. Birthday, when we give stemmcells back. Symbolicaly in this day, person starts to have new immunsystem and stop to have wrong immunsystem. It’s symbolic.
And your transplantationday is day zero. Today is your day 0 – your birthday. Congratulations!
Thank you very much for your support.
me:(Uuuh – my new life!)

 

 

 

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Original in Englisch:

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And this is your Iris. You know, Iris is symbol of our family. Our New life.
Iris symbolize ability to fight all difficulties. To go through the difficulties. After feeling down to stand up and go ahead successfuly. Your life is a new life without the disease.
And you can notice: Iris has three leafes – one, two, three. Past is the desease. Present is how we are fighting the disease. And future is diseasefree.
Or another tradition, 3 is magic number in many philosophies: This is your body, this is our brain and this is our heart. From these levels we need to fight our problems.
Because to cure the disease, we should use modern technologies. But also we should change something in our own, in our lifes, in our relationsship. So we will be successful.
This is your Iris.
me:(This is my Iris).
It is yours.
Congratulations!

This atmosphere is not a hospital atmosphere – it inspires! I can’t feel like in hospital – it is impossible! Everybody shares my experience.

And another tradition we have… latly treatlegion.. Are you ready?
me: (Yes, I am ready).
Especially for you!

 

 

So and this other tradition, the latent treatment;), that is the release from the liquid nitrogen. And we say

 

So that’s what he was, my wonderful second birthday. Then followed a small special private party with my special birthday cake, which I was allowed to share with the dearest people here on my station.

And the cake and the birthday were for me in the spirit of my Matroyshka. I finally tell you this special story behind it.

I bought a Matroyshka that will accompany my recovery process. The idea came about because this healing process will be quite long and energetic – and it’s hard to hold on without it to lose the necessary energy. Therefore the following idea:

Every single Matroyshka I give a milestone that I want to achieve. Each will accompany me in this particular phase. Starting with the first shell that falls. On her is the Firebird and I attribute the healing magic to him. He is sitting on a tree with apples (stem cells). This shell will fall if I leave Moscow.

The second Matroyshka symbolizes the harvest of the stem cells. In this process my body will reorganize its new immune system. This is the phase in which I have to pay special attention to germs, have regular blood count checks and probably wearing a common face mask.

The third Matroyshka will probably accompany me the longest. On it is a ship to see. With her I sail on the ocean of regeneration: hard training, rehab, whatever is needed to use the MS stop to rebuild. In this time setbacks are expected, some patients speak of sudden spasticity, etc. Just as the sea is flat, sometimes wild, sometimes gracious. On to new shores!

The fourth Matroyshka shows apples – my stem cells. My new immune system. Strong and healthy! When I have achieved that …

… I turn out the core – the little beautiful last Matroyshka. She carries the wing of the magic fire bird in the heart.

Well, and fittingly, dear Alexey Derkatch, who showed me some Moscow on my day off, organized a cake for me. Because coincidentally, the 15-year-old son of his girlfriend has just been awarded the best pastry chef in Moscow. And his mother is an artist. So they got together and conjured up this beautiful and otherwise absolutely sugar-free and only with real ingredients baked and absolutely delicious birthday cake!

Yes 🙂 And after that we ate, laughed and smoked. With our coats, masks and party hats.

It was such a special evening.

And even Dr. Federenko thanked him the next day, because he thought it was so nice and got up in a good mood. He could now work hard for the next 10 years 🙂 Please, so it was worth it!

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Soooo .. and now I am in isolation. That means: contact to the outside only through the glass. I wear a cotton cowl that fits the bald head – and great in combination with the “dreadlocks”, as I call them; So the catheter through which I receive regular infusions and through which the blood samples are taken. My blood pressure and my temperature are checked three times a day – this is photographed and dr. Federenko delivered. He visits the clinic once or twice a day. In addition, I wash with special antibacterial or disinfecting water, get a fresh cowl twice a day, change the bed every day, wipe it clean – and clean the air throughout with a special air cleaning system.

 

And so I look now;)

New Stemmcell Buddha.

 

 

 

Actually, I meditate a lot, which is so good for me. Every now and then I read your cards and look at your lucky charms. Or I read my entire blog again from beginning to today … what a way! It is not just a treatment, but an absolute turning point in my life. It is also necessary to reach my goal. I want to get well again and I know that I can do it. The next weeks and months will show me what is necessary. I love life so much, I will get well with all my strength!

That you support and accompany me, I can only say it again and again: my HEART THANKS for it! Because it is so important and it gives me such a power. Thanks again, thank you!