Category Archives: Allgemein

Friday, 22.11.2019

Hello my dears,

One year ago today I was sitting at Artemoda @ La deutsche Vita and working on my website to collect the donations. On 18.11.2018 my first donation day began. Today I sit in Artemoda @ La German Vita and write a book about everything that was;)

I have a spiral staircase in my apartment that I had to walk up on all fours before treatment. I came down with much concentration and a firm grip on the railing. I lacked coordination and balance. Today I walk up and down the stairs in a sure-footed position. Often I hold a laundry basket in my arms and smile over both ears – I love these stairs! Yesterday I went down the stairs with a full laundry hamper under my right arm and the vacuum cleaner under my left arm. I did not want to roll up the cable of the vacuum cleaner, it hung casually next to my body. And so I climbed sideways and step by step down the spiral staircase. I’m so happy, what fun !!

My spiral staircase

And it can not be put into words how tragic and scandalous it is that the doctors tried to persuade me that MS was incurable. The fight goes on! There are hundreds of thousands of people out there who getting told the same lie. After my appearance on RTL, I received many inquiries from those affected and heard many stories. Almost all neurologists speak out against the HSCT or express themselves unaware. Very few indicate that HSCT is the only possible chance of recovery. Yes, HSCT is a curative approach and the only way to stop MS – the sooner the better. The sooner, the more chance of regeneration.

I have found a portrait to not describe those affected by what a person with MS diagnosis feels like. I think it’s very fitting and pretty much describes what’s going on in an affected person:

We got caught in a trap. Getting the MS diagnosis is like being a wild animal that is literally in a trap. At first it’s hard to believe, you do not even know where you are right now. Gradually, the panic increases, because you realize that you can not come out. Again and again you hear: incurable! incurable! Like a wild cat I jumped against the walls and scratched and rapped. So many times I lay on my floor, howling with rage. I really have a very strong will and I usually know exactly what I want and what I do not want. And I wanted to get out of this trap! It took me a lot of effort to understand that I have to live in this trap. “Outside” there is no more for me, my life will now be this trap. It takes a long time for the brain to get it started. So. And then somehow you try psychologically to survive in this situation – how? One tries to talk life in the trap somehow nice. So I have tried to accept it and to find a way to deal with it. After all, you’re not dead, you still live – just in a trap, but that’s still alive. And nobody has it easy and so on.

And all of a sudden, the topic of stem cell transplantation and 90% chance of stopping, the word “cure” comes across, albeit cautiously. This is the door that suddenly opens! After finally having your brain ready to accept this trap, this door suddenly opens!

Most people will believe that you are about to jump through this door, out of luck. But no, that’s not how our psyche works. An animal that has been locked up for a long time does not immediately jump into freedom. For example, a bird in a cage who has been in the cage for a long time – if you open this door to the bird, it will not fly out immediately. He will just sit there and try to understand the new reality for himself.

Incidentally, I hate locking up animals – that deviates a bit from the subject, but I’d like to say it anyway. Most people justify themselves by saying yes, but in freedom they would not survive! Or: Look, he does not want to get out!

Yes, we all want to be free. Nobody likes to be trapped. And when the door opens suddenly, we need a moment. But most of us will go through!

There is no naive going on, as the doctors think protectively about us. We are also very afraid. Fear that hope will not be fulfilled. Fear of our own courage and that we fail.

And I tell you from my own experience: when you have gone through the door and are free, then you have not forgotten the life in the trap. You are not virgin in freedom. And the shadow is still there. One is traumatized. And that is also understandable, because in the case one is broken. Many symptoms remain and remind of the trauma.

Right now a report is going through the internet, maybe one or the other of you has already seen it. There is a man drawn by his MS so that he can only move his head. He even needs an assistant to clean his nose. He is currently fighting for the drug for euthanasia. To put an end to his life in Switzerland, he lacks the money. People are discussing whether it is right or wrong to give them this medicine. In this context, the word ethics often falls. I think this whole discussion is unethical. And I think it’s irresponsible that it even got that far. This treatment of HSCT for MS has been around for decades! But we are left in the belief of incurability. For legal reasons, for legal reasons, for many reasons.

Medication disguises the progression. On the outside, they slow down the relapses and deliver great results in the studies. But in the end they have no influence on the progression of the overall course! The HSCT, however, has a very clear influence on the overall course! And that’s the difference. And that’s why it’s a scandal that drugs are prescribed without even mentioning the possibility of HSCT!

I will write my book and I will continue to attend congresses and talk to people.

Soooooo many people have helped me to get out of the trap. Every time I go up and down my spiral staircase, I think of you!

I will use this flow, this wave, this energy until this trap no longer has to be a trap for everyone, but just a little detour in life. Life is so precious and valuable!

I created a group on Facebook. Here are other patients who have also done HSCT as well as interested people. There are occasional meetings to meet HSCT Warrior in person. I know how overwhelming it is to learn about the path of the HSCT. Whether this way is the right one or not, only everyone can decide for themselves. But often you just do not know how to decide. That’s why we offer these meetings. We advise neither to nor from! But to decide for yourself whether this can be a path or not, personal encounters may do just fine. Just to get a feel for it. How valuable that is, I have experienced myself.

So if one or the other person is interested in finding out for himself if this is his way, here is the link:

 MS-Warrior Orientierungstreff (german) 

Meanwhile, some of the group have already started and have gone this way. Others are still in the process of organizing money. Others are still thinking. And many keep in the background and just read along.

We do not chatter anyone. The only is: after the request, I write to you in the Messanger and ask for the background for the request. So we filter out the people who just want to stare, without being affected (yes, they are synonymous). We try to give the best possible protection because the subject is simply personal.

So that’s it for now. Many greetings!

From January I would like to go back to work and I am looking forward to it!

I will write something again soon. Bye for now!

21.10.2019

Hello my dears,

It has been a long time since I wrote my last post.

I had told you that I’m fine and I really want to be MS-free now – and thus like to leave the subject behind me. What should I say – easier said than done. The diagnosis and the whole process was a trauma. Being told that I’m suffering from an incurable disease is one thing. But all the examinations, the stay in the Mainz University Hospital, the whole procedure of taking anamnesis and diagnosis to get over, then to come back home, but still continue to take the disease – this is an experience that is probably not for outsiders understandable. What “incurable” actually means and how that feels can not be explained to anyone. Many then say, “Oh, that will work!” – No, it just will not, because it is incurable. “I have to go through it now!” – No, that’s not a tunnel, that’s a dead end.

And I remember very well how I sometimes lay on the floor in my apartment – howling! And absolutely desperate. Bucky like a little kid. And unable to accept my future forecast. I cursed God, then begged him again, challenged him – all at once.

And suddenly the miracle: there is a way out! It is not hopeless! It is to be stopped! And in the German Society of Neurology, even a press release has appeared using the word healing.
It’s a miracle! I did the miracle. That’s how it feels. And you helped me !! You laid it at my feet!

I am MS-free now. And I feel that too! My balance has improved and my training is not a bottomless pit, it is actually fruitful. That’s so great !!

– Nevertheless, it was not completely uncomplicated:
a few weeks ago, my blood levels suddenly dropped radically. I still go to the blood control weekly. One week everything was okay. And the following week, my leukocytes fell below 1000! Normal are about 4000-10,000 leukocytes and of which has about 60% neutrophils granulocytes (the immune system). And in my already too few leucocytes I had just 1% neutrophils! These values ​​I had during the isolation in Moscow. – So, what happened? The doctors here were at a loss … I then also contracted an infection and had to go to the hospital. There they were just as perplexed. So I got in touch with Dr. Fedorenko. He was not at a loss and explained that this was a side effect of rituximab that I had received after chemotherapy. This effect is described in the literature as LON. Unfortunately, the German doctors are very proud and did not really believe this explanation. I’m used to these windmill wheels by now … In the university hospital they would have liked to have a bone marrow puncture or, if they are already there, a bone marrow biopsy. The meaning behind it was not quite so clear to me, that’s why I refused. The resident medical assistant explained  – that I quote, “This way we can see if your stem cells have changed their shape, for example.” – Hm okay …. I was not in Fukushima!
Dr. Fedorenko said that I should not worry. The values ​​will self-regulate.
After being accidentally over-stimulated (I received too high a dose of Neulasta), I was discharged with 64,000 leukocytes and 83% neutrophils. As a reminder: Normal is 4000-10,000, I had 64,000 and severe bone pain because my bone marrow exploded.
Only a week later, the values ​​fell again, again to 1000. Dr. Fedorenko advised to stimulate again (this time, please duly dosed). But my hematologist told me frankly that that was just too expensive for her. Her budget does not allow that. If necessary, I have to go back to the hospital. Open and honest she is. Basically, I was happy, because I wanted to let my body manage it myself, even if it takes more time. So I put on the mask again. And lo and behold: it regulated.
Really bad, this side effect is not. You just have to react accordingly and have patience.

Meanwhile, I train a bit again – although my time-out really threw me back. That’s a bit frustrating, especially when you’re as impatient as I am. But it was predictable, because all the patients in front of me told me: in the first 12 months you are in the “Rollercoaster”, it goes up and down.

But all that does not change my happiness. I am happy! I do not think anymore: what will be tomorrow? I think tomorrow will be better! And I do not hope so, I know and I feel and I observe that it is true. My walk gets better and better. During the infection, my nerve conduction velocity dropped and I had to go to the hospital by wheelchair – these are the damages of the MS. But once the infection was out, I could walk again. And after everything stabilizes again, my successes come back again.

Dr. Fedorenko has given me examples: He still has contact with one of his first patients, whom he treated 19 years ago. She is MS-free until today! She was sitting in a wheelchair then, today she is walking on high heels. A similar success story has a patient who now lives in Germany – he has made the contact between us.

Many of you may have seen my post on Facebook. I will insert it again here. I find it incomprehensible how people are let down with their diagnosis. At the beginning of this post, I told you that it is not easy to shelve the subject of MS. Every fiber of my soul remembers this trauma. And I process it by continuing to fight – for others. This is how I process my nightmare. I want justice and I want the MS patients to get the same opportunity I got: get out of the dead end! And it makes me angry, with what ignorance the doctors proceed. And how they justify – for themselves and for others. That’s why I wrote this post:

HSCT against MS – my statement to the neurologists!

Again and again, I receive requests from MS patients who ask questions and want to know more about my experiences in Moscow.
At the same time, I get to hear that some neurologists (including mine!) are almost losing their composure and reacting very grumpy to the interest of their own patients in this treatment. Thus, some patients have to listen to the opinion of neurologists that “Moscow only wants our money”, it is spoken of “rip off”. One should rather go to Hamburg to Dr. Heesen, who has just run a study with HSCT in Hamburg.

At this point it is my urgent need to clarify the following:

Dear neurologist,

First, we will not let the money out of our pocket for fun! We are fighting for our lives – necessarily self-reliant, while you continue to prescribe drugs that are both high-risk and clearly (clearly!) ineffective. I do not have to argue here, you know the study data yourself!

15th of July 2019

Hello my dears,

I have not written for a long time, and many of you may have looked a few times, wondering how I feel and why I’ve been so quiet.
I want to leave the topic of MS behind me slowly and start my new, MS-free life. MS-free also means that I am breaking away from my MS past and not getting stuck in this topic.

I’m getting better and better, even if I experience a few setbacks now and then and continue to be patient.
My hair is growing and I have shaved twice already. The hair is getting denser and my new hairstyle I like so much that I would like to wear it consciously.

My walking distance had increased for a few weeks and I had noticeably more energy. For a few days I feel again 500kg heavy and running is a total of more laborious. Nevertheless, it is easier for me than before the treatment AND I also know that this is the prophesied ascent and descent and remain patient.
My energy is really good on many days, even though I still need breaks between activities. “Give yourself time” is still my motto and so I am happy and satisfied through the day.

In order to get myself fit again and to give challenges to me and my body, I started to train for about two weeks. I found the best coach for me, my personal Bruce Lee. Reza Manavi teaches me kickboxing, a sport that challenges and encourages me both physically and neurologically. We work very concentrated and I notice how I challenge my brain with many processes and reactions. But I also notice how my reaction and my balance improve – and that’s exactly what I want. In addition, kickboxing trains and strengthens the entire body evenly.

Reza is a very experienced coach who has quickly recognized my individual deficits and he understands how to use my individual form of daily life. And hey, that would not be my trip, if not here again something “magic” would be found. My coach, who is fighting me back to my new life, has the same day of birth, as the day my new life began: the 06.03. – my stem birthday. 🙂

Not a single day goes by that I’m not grateful. Every single day, I am fully aware of how fortunate I was that you have made this journey into a new life possible for me. I had been quite a positive and thoroughly happy person before. But it can not be put into words what I felt and experienced through this tremendous tidal wave of support. That you are so many people, who for the most part have only known me fleetingly or sometimes not at all … and that you nevertheless have taken such honest and benevolent share: for that, once again, my greatest heartthanking from very deep. Above all, I thank the people who actively supported me. So the people who actively offered me their help or who paid me money. You became those who were actively there for me when I needed help the most! And with that you became closer to me than many others in this time. And for that, I thank every single donor and helper of whole, very deepest heart!
And I thank those who have accompanied me with their good thoughts and their good and benevolent energy. Your good wishes and hopes have accompanied me. And those who know me know that I am a thoroughly spiritual person and I am more than convinced that this energy is influencing. That’s why I wholeheartedly thank you for making my way so beautiful!

As you’ve probably seen, I’ve changed this website a bit. From my donation page has now become a kind of info page. If you have friends or acquaintances who also have MS, you can read my story on my website and learn a little about the treatment. Anyone who has a personal question to me, you can write an email, my email address is listed under the menu item Contacts. There are other contact details, such as the Pirogov Clinic Russia or the Facebook Group, which consists of hundreds of other MS stem cell transplant patients.

I’ll definitely write something again in a few weeks. But the topic of MS is getting quieter with me, so I am also withdrawing from my blog.

Please feel all hugged sincerely. Thank you very much!

Lovely wishes
Katja

09.June 2019

Hello my dears,

Here is the 5th and last part of the reportage about my fight in Moscow.

I am, as I said, in love with this reportage.

On Tuesday, a 2-minute report will be broadcast on RTL Aktuell and in the Nachtjournal. It’s nice that the topic will once again be broadcast nationwide. This will inform more MS patients about this Plan B. About the way out of the dead end. About the chance of a life unpredictable again 😉

06th of June, 2019

Hi dears,

here you see me in isolation, the 4. of 5 parts.

05th June 2019

So dear ones, and on we go;)

In the third part it will be exciting. Here you see what exactly happened in the hospital;) You see the dialysis and you see the stem cell transplantation!

04th June 2019

Hello hello dear ones!

Today, the second of five parts of the reportage was broadcast, which I hereby terminate. The first few minutes will be familiar to you from previous reports. It’s about the prehistory, the preparation for Moscow and the statement of the health insurance!

3rd of June 2019

Dear ones, here you will find a really wonderfully successful report by german Television RTL Hessen about me and the treatment. Today, Part 1 ran from a total of 5 parts.

I am in love with this report! 💜

Many thanks to Rafael Fleischmann of RTL Hessen, who dedicated himself to the material not only with a lot of time, but also with a lot of heart and soul and conjured up a fantastic report from it.
Personally, memories awake – because the reportage picks up on everything so authentically and shows how I experienced it. I absolutely identify with this report – metaphorically speaking, definitely a special treasure in the album.

👉 Here now part 1 of 5:

June 01, 2019

“Hallöchen” = Hey!

Will you get that? 😉 “Karla Kolumna” , she is raging reporter from “Neustadt”, the german home of “Benjamin Blümchen” (speaking elephant) and “Bibi Blocksberg” (little witch).

And also a big role model for me in my childhood. I enjoyed sitting in my parents’ car with a cash register and a microphone in order to present a live recording of my traffic reports to my imaginary listeners.
And now this week a childhood dream has come true. Alexander Hartmann from the local “Weinstadtjournal” offered me a permanent author position as an editor in his online magazine!
My first article went online. It will be the beginning of a small series about my time in Moscow. The coming time will be published every Wednesday at 13:13 clock another article.

Weinstadtjournal – 1.Artikel

Weinstadtjournal – 2.Artikel

Viel Spaß!

In addition, the second part of the RTL Punkt 12 report has finally been broadcast. And as promised, I filmed it and set it here. I must say that I find the second part much more successful than the first part – phew;)

Who wonders why I sit so devoutly in my Stemmcell-Buddha outfit on my bed and look like I’m about to vomit … all right! 😉 I meditate. : D

And the “pulling in the bones” what I mention there, that was hardly worth mentioning – I would like to have clearly stated again at this point. Just like my “something with the kidneys”, what you hear me say. They were just a bit confused, because I normally drink too little and in Moscow I was instilled with a liter of liquid per infusion – they were not used to it. But all right 🙂 Actually, it was more that I have been waiting for side effects. Again and again, I have listened intently to whether anything happened …… “Ah, stop! A pull in the bones, there it is!” …. “Uh wait, something is kidding, I think I notice something!” But there really was not really anything there. I put off the chemotherapy very well, like most of the patients in Moscow. And not without reason, I deliberately went to Moscow – they just have so much experience and that makes it just as noticeable! ZDF recently ran a report, as reported a Hamburg patient (one of the few who could do the treatment, olé olé) ​​that the chemo was a hell of a trip for her – Although absolutely worthwhile, as she emphasized, but a horror trip. Well … there are now other countries start this treatment (including Switzerland) and are apparently too proud to learn from Moscow or Chicago.
Oh my, I could skip it for a while – but I’ll stop now. The fact is: me and my stem cell siblings fabulous!

Oh my dears, now I have been back for 74 days. 74 days! Time goes by incredibly. And it’s just such a big opportunity you’ve given me that could not be more valuable.

Currently I am in the “Rollercoaster”, in the roller coaster, as my stem cell siblings call it. And according to the usual calculation, I am currently at the peak: after 3 months, the symptoms worsen: fatigue, spasticity etc. So it is reassuring to know that my situation is just normal here. At the moment I feel like a heavy sandbag. I’m struggling to get up in the morning – not because I’m so tired (fortunately, the fatigue is over and toi toi toi, hopefully not coming back in the scooter coaster), but because my body is as heavy as lead. In addition, it hurts in muscles and bones – all tolerable, but just uncomfortable. And the progress that I have made in recent days regarding my walking distance, are currently declining somewhat again. I am relaxed about it and trust in my predecessors, who always reassure me that this is normal and will not stay that way.

So I continue training as far as I can and wiggling my walk with the Miko. The other day I made 3km !! That’s awesome, because even before the HSCT I was at 200-800m. So far, I can only do that if I meditate at the same time and are highly concentrated. At the moment I fell back to 1.5 to 2km. I continue to practice! My goal is 10km! For this, the nerves would have to repair again, so some nerve endings grow together again – but they are blocked by scar tissue, hence the name “sclerosis”. Although the body sometimes breaks down scar tissue in the peripheral nervous system, it does so in the central nervous system only under very specific conditions. But I believe in so-called miracles – we are finally in the universe!

In this sense: have a nice time! Enjoy the sun 🙂

May 7, 2019

Hello my dears,

since the beginning of the week, I have built a tripod in front of my TV to film the reports at Television RTL Punkt 12.

Television RTL Hessen will make my contribution available via link, there is no need for extra filming. At Punkt 12, however, the amount is embedded in the 2-hour episode … so I’ll shoot it better.

The first part was on Monday. When the second part is broadcast is uncertain for all parties and is spontaneously decided on the same day … so I look now every day Punkt 12 and wait for it.

The first part I introduce you here once.

It very resembles the very first report, which ran in January at RTL Hessen…

RTL Hessen will broadcast the 5-part series in early June.

If I do not have to hang in front of the telly 😏 … I enjoy the wonderful spring – even in the rain: “Mayrain makes you beautiful” it says.
Most of the time I ride my bike – that’s a lot easier for me than a walk. Today, however, just before sunset, there was such a magical spring atmosphere in the Hochheim air. Somehow the birds chirped especially easy … easy like Sunday morning 😉 or Friday evening. So I grabbed Miko and just started walking in the vineyards. Mostly I manage 400m, then I turn back. The last few times were sometimes even 600m in it 💪. On the way back I have to take a short break and sit down for a moment. And today … I went for a round that I have not done in a long time – for the last time a good year ago, I think. It is a round of about 1500m. Without a break I walked through the beautiful May. I celebrated myself for it, so it’s better! In front of Moscow it was already over after 200m, a way back was unthinkable. And then suddenly there was a very familiar smell in my nose: irises!

You can certainly remember the badge that Dr. Fedorenko handed over to my stem cell birthday and its importance.

The iris is said to remind me to carry on / hold out when it gets difficult during recovery or I run out of patience. And during my already wonderful walk, my Iris-friends suddenly grew wonderfully fragrant 🙂

But, as the iris reminds us, it’s a lengthy process. My left hand is currently not in great shape and can be controlled a bit more difficult – but I give myself time.

I give myself time with everything, all day long. At first I was still very impatient and wanted to regenerate as fast as possible and annoyed me when I got tired. Meanwhile, I sleep in the morning for a long time and then take a lot of time for each activity, as much as I need. I myself set my pace. So the day goes around very quickly, although I have “done” only one or at most two small tasks. That’s okay too.

To remind me that time is what I need now, I’ve been hanging a note on the mirror for a few weeks now.

“Give yourself time” is there. A sentence that my stem cell sister Stina had told me over and over again at the time when I was still pretty impatient with myself.

Thank you Stina 🙂 It is the most important sentence that I’ve heard and read over and over again like a mantra – and then I got it, hehe.

My blood counts are good, according to my hematologist, although they continue to fluctuate. I have one of my weekly appointments with her again next Monday, then she’ll explain to me again exactly why it’s fluctuating and why that’s okay;)

I do not have to take medication anymore since the treatment – Yeah! I’m really more than happy about that. For that, I take a handful of vitamins and minerals every day that help my body stabilize and, if he likes, heal a bit too 🙂

Every day I take as 10 different and colored tablets and capsules.

Especially vitamin B, high doses for the nerves (which have been damaged by the MS).

In addition to Vit B 12, one capsule also contains uridine monophosphate, which supports the regeneration process in the case of neuronal damage – which makes it very suitable!

Then I take magnesium, also good for the nerves and for the brain – that has holes in me, so with the “salt of rest”.

In Moscow, iron deficiency was diagnosed. According to Dr. Fedorenko I stood with my who just about anemia. But I have researched that the Russians have different normal values ​​than Germans do. Well, according to our local tables I am still in the lower limits. Anyway, I take iron – if not more every day since my value has improved.

Then we have those green capsules – hehehe … that’s Moringa! Here at german home still relatively unknown, in the US but a veritable trend. The Moringa tree or miracle tree, grows uncomplicated, fast-paced and you can use everything about it. Moringa trees are considered to be the most nutritious plants in the world, a so-called superfood. In many developing countries, the tree is used to combat malnutrition. In the media, Moringa is made more nutritious than it really is, so no miracle tree;) But because it is nonetheless very nutritious, two capsules a day come into my tablet box.

A recommendation of ex-patients from Australia was then still alpha lipoic acid against oxidative nerve damage.

I also take quite a lot of Vitamin D3! A vitamin D deficiency was also found in Moscow and was also confirmed here. With vitamin D, studies are repeatedly made in MS, as a deficiency should adversely affect the course. Better a little more vitamin D than too little is the motto, so I take a lot of it.

And while I’m at it, I also take vitamin A for the eyes – they’re getting worse and worse.

So my body gets a lot of tools to tinker and build.

In this sense, I wish you a nice weekend and continue to have a great May. And should it rain again, remember: put yourself into it and enjoy;)

I would like to say THANK YOU again for your great support. I think again and again of the eight weeks in which you have made possible my new life. I still can not really grasp what happened there, it’s just so beautiful. During my time in Moscow, but especially after that, I have had moments in which I have been consumed by it. Who once experienced this (and that will probably be the least), who can understand what I mean. It’s really hard to tell anyone else what an experience it was and is! I still remember how I was completely overwhelmed at the beginning, so I kept crying. One or the other will remember. That was just gratitude, I think. You fought with me – for me and my life. Even if I have not written it here for a while, there really is not a day when I do not think and feel it: Heart Thank!

May 11th, 2019

Hello, dear ones,

I would like to inform you that the article about me and my ride to Moscow EVENTUALLY will be broadcasted next Monday, 13 May 2019 at german Television called RTL Punkt 12.

It will be a report in two parts, the first part may be broadcasted next Monday 12 o’clock midday. The date is not so certain, because current topics are in the news and of course they are not predictable.

Who has nothing to do 😉 can have a look at RTL Punkt 12. If it should not be broadcasted, then perhaps on the next day same time.

Besides there will be at 6pm with the regional RTL Hessen a 5-part report row, which could start also on Monday.

So let’s have a look! 😉

I’ll keep you up to date!

07/05/2019

Hello my dears,

after the new era, today I am exactly two months and one day old;)

And I’m still fine and I think better and better, even if it feels like my stem cell sisters and stem cell brothers have prophesied: I’m in a roller coaster. On some days I feel a lot better, on other days the old symptoms are worse than before treatment. But that is normal and was to be expected. This roller coaster will usually take six to twelve months to stabilize.

Right now I am in Bernau near Berlin. My longest and very, very good friend Mica lives here together with her dear husband Andreas in the countryside. She is a shaman and I’m not just here to relax – but also to release inner blocks and indulge in wholesome ceremonies. Partly this is a painful but in the long run a very salutary process. Anyone who is familiar with such rituals knows that something “comes up” that I want to look at and disintegrate. Above all, this serves for the inner, deep inner sorting, for internal clarification and cleaning. If illness originates on a mental or subtle level, I do everything I can to make my mind and body a wholesome environment in which to have a healthy immune system.

Here are some news:

Some of you will remember my articles in the ‘Weinstadtjournal’. Alexander Hartmann made me the offer of a permanent author place last week, so that I can now freely and regularly write for the online magazine. I am very happy about it! I will also link my articles there regularly. Then you will also regularly read something from me more often 🙂

RTL is also in the make 🙂 I was given a handheld camera to Moscow to film itself. I did that very extensively so that several hours of video material came out of it. The editor Rafael Fleischmann has now completely spotted the material and cut it into several units. As soon as the broadcast date is fixed, I will inform you about it.

Monday, April 22, 2019

Hello my dears,

today is April 22nd, 2019. This was the original date on which I was to fly to Moscow. Do you remember? Due to my worsening condition, I had requested an earlier appointment – and was able to be admitted on 18.02.2019. My actual date of admission in Moscow would have been today … 🙂

Today I have the treatment already behind me. Exactly 34 days ago I landed back in Germany again and at home.

It all happens so fast … Somehow I have the feeling right now that I can not really experience the things that happen, not really.. These are moments that happen while they are already passing me – without at least a moment to stay. Without being aware of it and watching it for a while. Since November 2018, that’s how it has been since the beginning of my “journey” – I sometimes feel like I’m in a flip book! … bssssssssss, finished!

How am I? Tomorrow I have another appointment with my hematologist, who determines my blood levels. I’m curious if or how the blood levels have settled in the meantime. Otherwise I enjoyed the sun for the last few days and even cycled. Life is just good! Also, Miko was happy that I once again take a trip with him – because I could not be on a trip with him for months. So really nice.

Back there you can see Miko running after me 🙂 But do not worry,  Miko is fitter than the video suggests. Most of the time he ran next to me 🙂

Nice together, what a great dog!

There have also been moments when I could run really well, even uphill. I continue to do  sit-ups and squats regulary to regain my muscles.

Next week I have an appointment with a trainer, who creates a training schedule with me. But, as I said, there were already really fit moments when I could walk well and persistently, as if the MS had never been there – ok honestly, I’ve only ever had that moment once. But hey, I had it and it was amazing. I am pumping myself with all the vitamins that help me to regenerate. If there is a chance that existing damage can improve, I will provide my organism with the necessary funds.

Also mentally I feel better now. The cortisone seems to break down and I feel almost like the “old one” 😉 In addition, I’ve bought a wig, as you may have just seen on the video by bike. That feels good! As I have already reported, it is difficult to describe how it feels without hair – as a woman. At first, baldness even gave me strength, as an expression of an MS warrior. After only a few days, however, I missed my own femininity – which I also find in my hair, which I was not aware of until now. Because I did not have a long Cinderella splendor – and yet. Hair also seems to be a kind of protection, on a mental level. With hair, I feel better “me”, the bald leaves me open and offers no retreat. It is difficult to describe. In any case: I have hair again!

The selection was not easy, I visited several wigs shops. I thought it was simple: I choose beautiful hair, put it on – done. But nothing there. Every wig looks different than it does on your own head – the hair really does look and feel completely different than on the doll’s heads. I certainly had over 50 wigs on, of which 48 looked as if Carnival. Or as I park outside my Manta.

Finally I reached into my pocket and bought a real hair wig. My own real hair is not starting to grow yet and that will probably take a few more months. I should expect it at the earliest in 3-5 months. And honestly … I’m tired of the caps. They do not suit me and especially in warm weather I do not like them. Alternatively, I can tie myself a cloth – that suits me, but after x days of cloth, I feel slowly like grandma “Betty”. And the bald is uncomfortable, it pulls.

So … once invested in good mood and self esteem and Ta-Daaaaaaa:

Looks almost like my “old” hair, I think. And this “normality” just feels super good and gives back a lot of energy.

The bald head has its advantages, of course, you have to say. My stem cell sister Stina from Norway said recently that she enjoys it using only a shower gel, quick. And when she appears in public with the bald head, people treat her very friendly. And yes, I noticed that too. Previously I heard horror stories like that, you would also be ridiculed why you show yourself so “radical”. I have never experienced something like that personally. On the contrary, I am doing the same experience as Stina. The strangers to me, e.g. at the cash register or any location, I feel more consciously, so my impression – they are friendly and somehow more open. And that shows me: people are good!
I already had the same experience during my fundraiser. I did not know what to expect when I asked for support so openly. And of course I had also expected negative reactions, e.g. what I would think, that I am outrageous or or. But really true, there were only positive reactions. So again: people are good!

Honestly, I have to say, there was one negative reaction – at the Hochheim Christmas market when I had my information booth. A skeptical lady was upset about the stem cell transplantation in MS, this she has never heard of and do not believe in it, something like that. At that time, however, I was in the bathroom and my friend Iris, who was accompanying me to the booth, dedicated herself to the lady. So I myself did not notice anything about this only negative reaction.

But, back to the topic: Hair is important! And I am very, very happy about my new human hair wig:

And by the way, the wig is also a bit of fun 🙂

Many of you will already know the video from Facebook or Instagram. This was created during an Easter trip to domain Mechthildshausen.

Sometimes it is simply tempting to irritate the people around you. And while laughing about yourself

So my dears, the next days I will let you read something again. Maybe then I can already announce the broadcast date of RTL Television.

All the best and enjoy the spring! Life is beautiful! Open senses and HEART, so let luck in. Sometimes we forget that from everyday life. Give the flip book no chance. Maybe we only live once, and we should do that with love and joy. (Also, if we live several times, we should do that!). Love and joy we find in the NOW, tomorrow brings always another tomorrow and then you lose yourself.

I would like to thank you all again. You have made it possible for me to feel so light and happy. Life has become unpredictable again.

Therefor thank you very much! Thanks also to all those who follow my blog and accompany my situation. This creates a WE feeling that has kept and still keeps me strong in so many difficult moments and holds.

April 11, 2019

Hello my dears,

yesterday, my dear school friend Sebastian Lapke has taken some pictures of me again. In this special and momentous moment of my life.

Most of you will already know this image from Facebook. I have received a lot of positive feedback on this picture – it radiates happiness and strength.

I must admit that at this time in some moments it is difficult for me to perceive my own power. In many situations I search for her.

So without hair you feel naked and vulnerable. A woman without hair … in weak moments I feel defenseless. I did not think it mentally matters that much. But it does.

In addition, the head is always cold, even in the apartment. The bald men among you will know that for sure. It’s just always pulling up and the body releases its heat up … even at night! That’s why I now use a sleepyhead

😁

Fancy, right? 😉

Yeahhhhh… I’m just on the way up. After my mood low, I have gained new motivation for the path that lies ahead. It is the third phase. And I think I can “skin” my Matryoshka again soon and move on to the stage with the sailing ship. My blood levels are good and stable. The sailing ship is going to be the heaviest and longest phase … It really gets on the nerves (in the truest sense of the word) to wake up in the morning with leaden legs that make it difficult to make it to the bathroom. Some days, the old symptoms are worse than before. This is normal, so I should not scare me (but do it in some understandable way anyway) and it will be the next 3, 6 to 12 months. I’m curious.

Now I’m getting better and better. I diligently train my athrophised muscle groups and dare on some days a walk that succeeds me well with breaks – so really good!

Yes, it is a long journey. The focus was on the treatment, which of course is the basis for everything else. Here, many people shivered and hoped that everything goes well. I have to tell you honestly, dentist is worse;). The treatment in Moscow was really okay. Now is the phase in which I personally fight. This phase now tears at the nerves (in the truest sense). The chemo was a physical procedure, now follows the mental. Because the fight is just different. Therefore, I am all the more pleased that my body is so alive and can be persuaded to go for a walk. Activity just works so well and I miss it! I also miss a bitnhe stress and doing many things at the same time 🙂 I should refrain from saying literature and good advice …

I’m happy when I’m fully back!

April 08, 2019

Dear Ones,

The day before yesterday I had my one-month stem cell birthday 🧚♂️🦋🍾 and it is tomorrow (Tuesday) already exactly three weeks that I’m back from Moscow.

So slowly the roof falls on my head, walls coming closer and closer and I would like to be more active. After spending almost 8 weeks primarily lying or sitting, my muscles have receded. That’s why I’m doing a few exercises at home now, and oh well … I can not do a single squat! 😱

But now you have to know that I did not do a lot of squats before the treatment and also before the MS … 😅

It is still too early for a tough training program, but at least I will counteract the atrophy as far as I can.

Yes, that is what I am dealing with.

I communicate with my Stem Cell Sisters, who live in Australia and Norway and each fight their own fight, which is basically similar. This exchange is doing very well. I feel especially connected with my stem cell sister Stina from Norway. She has a stem cell birthday one day after me, but otherwise our treatment went in parallel. We came in and out of isolation on exactly the same days – during which time we communicated with knocking marks on the wall – because we share the same humor; 😉 of course, but also via the Internet.

Moscow was a special time that probably connects us forever. And it feels good to know someone who has experienced the same, shares the same fears, and feels the same hopes the same way.

It’s still a long way, Step by Step. “We have to give ourselfs time.” Stina always says.

It is tempting to believe that we have put this treatment behind us and then quickly return to our “life”. After all, this recovery path is just a phase of life. And I’m curious about the individual processes!

It is a long way – but it leads out of the MS! It’s a great opportunity you’ve given me!

Incidentally, RTL not only gave me a small handheld camera to Moscow to film a few impressions – they also visited me in Moscow. Presumably, a small contribution will be broadcast this month, this time nationwide. As soon as the broadcast date is fixed, I will tell you here.

I am glad that the media have found interest in the topic. It is time for other MS patients to be made aware of the way out of the impasse.

Dear ones, I wish you a nice week!

April 02, 2019

Hello my dears,

I give a little sign of life from me …

Today I have been back from Moscow for exactly two weeks.

These two weeks have been very turbulent and were or are mainly associated with emotional low moods. I think this is a side effect of cortisone, which I have been given over 3 weeks high and is now degrading. Or / And it’s the hormone metabolism that has been compromised by chemo. But most of all, it’s this whole procedure that is now falling away from me.

I try to sleep a lot – because I actually feel very exhausted. I must admit that it is not easy for me to give this rest.

After all this great active time – this overwhelming fundraiser and then the treatment in Moscow, calm returns. I am slowly starting to realize what has happened in the last months and weeks. It is done now. But what I miss urgently is a result. This uncertainty as to whether the treatment was effective or will be effective is difficult to bear.

Now I have to recover first and regenerate, as it is called beautiful. This means that I now passively fight – that’s hard for me.

In any case, my blood values ​​have developed relatively well again, so they sent me home without further antibiotics. My hematologist here in Germany is also happy with the development. So I do not live in isolation, I may receive visitors (if healthy), the Miko is with me again and I am free to move. In the supermarket or at much visited places but I wear a mask – not to infect me, if someone coughs.

This is the current state of affairs.

My biggest concern right now is whether the treatment has struck – because there is indescribable hope associated with it. I have to give myself time and that is not easy.

Especially as the symptoms in the coming months are likely to initially worsen until they come to the starting point (and with very, very good luck to improve). So patience is needed. That’s why Dr. Federenko also gave me the symbol of the iris (see blog from 06.03.2019, my second birthday). The iris should remind me at this time to remain positive and not to despair. So it’s a long and exhausting way that lies ahead. At the same time, I feel very exhausted, physically as well as emotionally … But I also know, it will not be long, then I will be motivated and optimistic – as always it was 😊

And there are also little moments of happiness;)
The other day I washed my hair with my favorite shampoo (in words: H a i r)! I had to laugh tears, this moment was just too absurd. But it was nice 😅!

Of course I’ll keep you up to date.
However, as I said, calm and giving time has returned, so there is not much to report. As soon as I have overcome the zombie existence or if some thoughts come to me in the meantime, I let you participate.

Lovely wishes!

03/22/2019

Dear Ones,

On 18.03.2019 a detailed final discussion took place, which I recorded on tape, since there was a lot of information.
Compared to the MRI device in Germany, the device in Moscow seemed to be more accurate. Overall, significantly more lesions / lesions of MS were seen, especially in the cervical spine. The recordings were given to me in the original on a large slide and as a CD.
The cervical spine had always intuitively been the area that had worried me most …

Dr. Federenko showed me all these many big and small, long and short, but very many holes on my nerves … – and he said: “what we saw here was dangerous – and would have led in the next few months with a high probability of disability . ”

That’s what I felt and suspected – at last I could only go 200m for a while ….

“We stopped it!” said Dr. Federenko and took me in the arm. “In time!”

I can not describe it to you in words, what I feel.

It is a new life. It’s on time. It was the right decision.

You gave me this chance!

On 19.03.2019 I said goodbye to Moscow. It was a very moving moment.

For further questions, please contact Dr Federenko and his assistant Anastasia via WhatsApp on their mobile phone numbers and email. This is so common.
In the summer of 2020, I will once again travel to Moscow to check for Moscow.

Otherwise, I will be provided by my hematologist in Germany.

I am happy.
I am MS-free now.
The MS has left a lot of damage, more than expected.

And it takes time and patience for these damages to regenerate.
Dr. Federenko says that is unpredictable. If the damage has already scarred, regeneration is unlikely. But if there are fresh wounds, there is a chance. He can not see that.

I’m an optimist;) and I’ll keep fighting. The actual way begins only now …

But the body needs the next three months exclusively for recreation. I also realize that I am exhausted. But a little more than expected … For an hour to enjoy a cup of tea or coffee in the sun for me is just action and activity pure – then I’m actually exhausted and fall into a deep sleep phase.
I’m trying to arrange that right now;)

I am exhausted, but I am happy.

Saturday, March 16, 2019

So dear ones, today I get again a rather prophylactic, but valuable treatment.

If somewhere a sick B lymphocyte could have been hiding, the rituximab will kill her.

Broom clean, as they say! – or no, just not! Broom clean was yesterday;) Number sure! We do not do things by halves! 💪 Here is whining!

The procedure now lasts a total of 5 hours, as usual I am well supervised. Allergic reactions, such as B. chills or heart pressure are to be expected. Every 20 minutes (in reality it’s every 8 minutes) somebody looks after me. Besides, you showed me the red button. 😂🙏

Then I will have driven here again and again. 🌞

That’s something nice, honest!

Well, now, I’ve been over three hours, they’ve been a bit faster for 1.5 hours and now only come in every 30 minutes. Or, if I press the red button. I’m not pushing. Not hot, not cold, completely relaxed. Bissi exhausted, but I’ll treat myself.

That’s it then! 🧚♂️🍾

A bottle is the cortisone that ran first. The small bottle was the second, acetaminophen. And now the rituximab runs for a total of 5 hours.

Rituximab is a monoclonal antibody against the cell marker CD20, which occurs mainly in B cells – where the MS squats. The drug rituximab therefore binds to these cells and leads to cell death. It is deliberately used after stem cell transplantation etc., just for the final ground section.

Rituximab is used in non-Hodgkin’s lymphoma, various forms of leukemia, severe rheumatoid arthritis, and graft rejection, among others. It has also been shown to be effective in certain autoimmune diseases such as multiple sclerosis.
It’s only a prophylactic in my context, to be sure.

🌈🧚🧚🧚

Saturday, 09.03.2019

Hello my dears,

I’m writing to you just from the isolation, in which I am now for about a week. Everything went smoothly, my new stem cells are transplanted and this morning my leucocyte value was 0.1%! This means that the old immune system has now gone to Nirvana and my new life begins. Or to talk to Dr. Federenkos words at noon today to say: “o, 1%, your immune system is completly dead now – congratulation!” 🙂 Hahaaa, that’s what I call a meaningful sense of humor!

What did I have a nice stem cell birthday! This clinic here and the people I share this trip with are wonderful. It’s not just a clinic, it’s almost like a guru camp with infusions. 😉

March 6, 2019: My Stem Cell Birthday!

At first, Dr. I gave a speech to Federenko, which I have incorporated here as a video and translated, because the Russian accent and the sound altogether might otherwise be difficult to understand.

Then he infected me as usual in this clinic a badge with the flower Iris and also said a few words that I set you as a video and text.

As another tradition, I have recorded the pouring of the MS, also here again a video and pictures. The ritual is repeated three times, symbolically – to disperse the MS in liquid nitrogen (I think the autologous stem cells were kept here and this now symbolizes the process of separation).

And then there are pictures of the party and the beautiful cake that I baked – based on my Russian Matroyshka, whose backstory I wanted to tell you too. This again in the video and with pictures and text.

Have fun! And you will get to Dr. Recognize the importance of YOU in my healing process! It’s just not just this treatment, but the positive energy and support of loving people in life. And you are so many and you are so authentic in it and that gives me so much power. That’s why I’m so happy. Deepheart-Thankyou very much !!

Original in Englisch:

We had six successful transplantation today, but some of our friends are tired and change their decision to make the celebration tomorrow.
To be honest, everybody is okay, no problems and no side affects.

But Katja is the strongest one. From the beginning she admitted to hospital I saw her only smile. Only high level motivation. Only energy to fight Multiple Sclerosis. No doubts! No doubts at all. Maybe I had doubts, but you…. no!

me:(What you had doubts, why?)

So we are the team, we work in proporation. And sometimes medical team needs your support. When we are tired, when we exhausted, when we have stops to go ahead, to make decision about difficult medical situation – we need your support. You also need our support.
You/we need your family, your children, your parents, your husbands, your wifes – Support!

It is impossible to fight Multiple Sclerosis only using transplantation. You can fight MS only, if we are the team and when we combine the transplantation with our energy.
If it’s pain: lots of power, energy from our brain and heart and: kill the monster! Mentally using all our energy, motivation and of course synthetic based high dosed chemo therapy.
And of course day 0 – this is like a birthday. Birthday, when we give stemmcells back. Symbolicaly in this day, person starts to have new immunsystem and stop to have wrong immunsystem. It’s symbolic.
And your transplantationday is day zero. Today is your day 0 – your birthday. Congratulations!
Thank you very much for your support.
me:(Uuuh – my new life!)

Original in Englisch:

And this is your Iris. You know, Iris is symbol of our family. Our New life.
Iris symbolize ability to fight all difficulties. To go through the difficulties. After feeling down to stand up and go ahead successfuly. Your life is a new life without the disease.
And you can notice: Iris has three leafes – one, two, three. Past is the desease. Present is how we are fighting the disease. And future is diseasefree.
Or another tradition, 3 is magic number in many philosophies: This is your body, this is our brain and this is our heart. From these levels we need to fight our problems.
Because to cure the disease, we should use modern technologies. But also we should change something in our own, in our lifes, in our relationsship. So we will be successful.
This is your Iris.
me:(This is my Iris).
It is yours.
Congratulations!

This atmosphere is not a hospital atmosphere – it inspires! I can’t feel like in hospital – it is impossible! Everybody shares my experience.

And another tradition we have… latly treatlegion.. Are you ready?
me: (Yes, I am ready).
Especially for you!

So and this other tradition, the latent treatment;), that is the release from the liquid nitrogen. And we say

So that’s what he was, my wonderful second birthday. Then followed a small special private party with my special birthday cake, which I was allowed to share with the dearest people here on my station.

And the cake and the birthday were for me in the spirit of my Matroyshka. I finally tell you this special story behind it.

I bought a Matroyshka that will accompany my recovery process. The idea came about because this healing process will be quite long and energetic – and it’s hard to hold on without it to lose the necessary energy. Therefore the following idea:

Every single Matroyshka I give a milestone that I want to achieve. Each will accompany me in this particular phase. Starting with the first shell that falls. On her is the Firebird and I attribute the healing magic to him. He is sitting on a tree with apples (stem cells). This shell will fall if I leave Moscow.

The second Matroyshka symbolizes the harvest of the stem cells. In this process my body will reorganize its new immune system. This is the phase in which I have to pay special attention to germs, have regular blood count checks and probably wearing a common face mask.

The third Matroyshka will probably accompany me the longest. On it is a ship to see. With her I sail on the ocean of regeneration: hard training, rehab, whatever is needed to use the MS stop to rebuild. In this time setbacks are expected, some patients speak of sudden spasticity, etc. Just as the sea is flat, sometimes wild, sometimes gracious. On to new shores!

The fourth Matroyshka shows apples – my stem cells. My new immune system. Strong and healthy! When I have achieved that …

… I turn out the core – the little beautiful last Matroyshka. She carries the wing of the magic fire bird in the heart.

Well, and fittingly, dear Alexey Derkatch, who showed me some Moscow on my day off, organized a cake for me. Because coincidentally, the 15-year-old son of his girlfriend has just been awarded the best pastry chef in Moscow. And his mother is an artist. So they got together and conjured up this beautiful and otherwise absolutely sugar-free and only with real ingredients baked and absolutely delicious birthday cake!

Yes 🙂 And after that we ate, laughed and smoked. With our coats, masks and party hats.

It was such a special evening.

And even Dr. Federenko thanked him the next day, because he thought it was so nice and got up in a good mood. He could now work hard for the next 10 years 🙂 Please, so it was worth it!

Soooo .. and now I am in isolation. That means: contact to the outside only through the glass. I wear a cotton cowl that fits the bald head – and great in combination with the “dreadlocks”, as I call them; So the catheter through which I receive regular infusions and through which the blood samples are taken. My blood pressure and my temperature are checked three times a day – this is photographed and dr. Federenko delivered. He visits the clinic once or twice a day. In addition, I wash with special antibacterial or disinfecting water, get a fresh cowl twice a day, change the bed every day, wipe it clean – and clean the air throughout with a special air cleaning system.

hang looose…

And so I look now;)

New Stemmcell Buddha.

Actually, I meditate a lot, which is so good for me. Every now and then I read your cards and look at your lucky charms. Or I read my entire blog again from beginning to today … what a way! It is not just a treatment, but an absolute turning point in my life. It is also necessary to reach my goal. I want to get well again and I know that I can do it. The next weeks and months will show me what is necessary. I love life so much, I will get well with all my strength!

That you support and accompany me, I can only say it again and again: my HEART THANKS for it! Because it is so important and it gives me such a power. Thanks again, thank you!

Tuesday, 05th March 2019

Tomorrow morning, on the 6th of March 2019 I get back my stem cells…

🙏🌱🌈🌱🌈🌱🌈🌱🌈🌱🌈🌱🌈🌱🙏

Sorry, this entry is only available in German.

Saturday, March 02, 2019

Hello my dears,

after I had put away the first chemo yesterday quite well (apart from the skull thumps, matching the hairstyle 😜), the night was mixed. I fell asleep with mild cardiac arrhythmias, which were only entertaining. As well as a pulling in the left abdomen for a few hours. For that I am constantly accompanied by stomach pains and a mild bladder infection.

Today is the second day Chemo of a total of four. So, if you do not hear from me, it’s because I’m pulling back a bit. Do not worry, I am here in very good and experienced hands, the doctor is available 24 hours and prepared for everything. They have been doing nothing else for over 20 years and I have the impression that they do it authentically with heart and mind.

Thank you again for this opportunity! I’m hanging on the ropes a bit, but I’m very lucky.

Thursday, 28.02.2019

So, short information in advance: the Chemo starts tomorrow, 01.03.2019.

Yesterday, enough stem cells could be fished – they now wait well in the ice age. Today I am so tired, that is incredible. I suspect that this is related to the treatment yesterday.

At noon today, as every day, a nurse came in for a quick hygienic wipe. I barely got my eyes open in greeting. She waved directly: “Sleep Katyusha, sleep, sleep!” – You are all so cute to me here. Really nice. I slept sooo much, like some kind of living stone – unbelievable how tired you can be. In between, I thought someone would come to my room. I wanted to open my eyes to see who it was – but the eyelids were too heavy. I heard then how the person uses my toilet … so that seemed a bit strange to me. So I blinked with Ach and noise …. dear ones, there was nobody. Nobody! I had such similar moments twice today. Insane.

Also, I feel like a mix of Neo from Matrix and Bob Marley with my cable salad on my neck …

If I sit down on the cair, then I stay awake. But as soon as only one toe touches my bed, I drift away 🙄😂

Otherwise I’m fine. This morning they have cleaned my new ZVK again (🔥🔥🔥❗)! That was good! Nice, when the pain subsides, oh weia!

Dear Ones….

Tomorrow it starts … tomorrow my sick immune system will be destroyed. I do not want to banish it. Basically, my body just wanted to protect me. My immune cells thought my brain and my nerves were something sick to destroy. That’s a malfunction, not less. So I actually thanked my immune system for the effort. But I also explained that it has to leave my body now because it just does not do the “right” job – and I do not think my immune system wants to do a wrong job with such zeal! So. So tomorrow it will be adopted, destroyed, destroyed or as I call it currently: “transformed” – because we live in the universe. And somehow it will find its right job somewhere in some way that is still inconceivable to us humans. But not for MS and not for me !!

So tomorrow is Chemo announced. Fight the MS !! Probably for 4 days.

Tuesday, 26.02.2019

Dear Ones … Yesterday I told you about my success, that I successfully mastered the big, scary ZVK. I was really very proud of that. 😉 I sometimes felt a bit like from the movie “Matrix” or happen to be a guest at the Russian Nasa;) These may be the special impressions, the sedative, the cortisone and the lack of sleep, what me here and again funny thoughts brings …

This morning Dr. Federenko then pushed the dialysis machine or stem cell collector into my room. So I had the opportunity to stay in my room, which I found very pleasant.

The machine stated that I have 3.6 liters of blood, which now rushes through the dialysis a few times within the next 5 hours to filter plasma from blood and just the stem cells. This was then separated in the individual plastic bags.

I was a bit tired, but like Dr. Federenko always likes to say: 💪 ready to fight MS!

Little by little, my stem cells gathered in the bag next to my pillow … What an exciting sight that was … my future … 🌈

Welcome my first stem cell babies🌱🐞💞 – you will become the basic substance for my new life🐛🦋

And just as I am, I talked to my stem cells very well and explained to them that they can enjoy the Ice Age again while the doctors destroy the universe “body” in which they actually live and work perform a reset … The reason is because everything just does not work as it should. But after that they will be transplanted back into good framework conditions – in order to be able to start their mission as an effective immune cell 🙏- Jippie!

Yes …. sometimes it is important for me to deal with circumstances in such a way.

And behold, surprisingly, Dr. Federenko this afternoon already informed that my stem cells were very lively, that we have collected enough stem cells, tomorrow no new collection is necessary uuuuund: me my ZVK will be drawn tonight … And so it happened:

So that’s kind of a rollercoaster ride ….

– Yesterday I had taken all my courage together (which was not easy), brave my great fear and overcome this with flying colors – I would have liked to walk my “pride” for some time longer … – and there will be ZVK actually pulled back today !!

Supposedly because I was so positive that it just ran faster than planned, Dr. Federenko. Hm yes …. maybe also because I only have 3.6 liters of blood, I say. Anyway, a little sadness is there. Such a great fear, whose overcoming I could only briefly enjoy.

But …. is not that bad, says dr. Federenko: Tomorrow morning I’ll get a new ZVK !!! Waaaaaaaas? Roller coaster ride I tell you ..

Relaxation is very important here;) The new ZVK will be smaller and much more comfortable. He then serves chemo and also to bring back the stem cells. For this it simply does not need the large ZKV, which could also cause infections.

So it’s time to bite your teeth together tomorrow morning or relax.

I’m glad that everything is going so fast. On the other hand, I am also overwhelmed. Most of the time I am happy, that is my mood, which rests above and below everything stable. But there are also moments when I cry. Moments in which I realize how fast it all went and how much zeal and kindness you brought me here. That still sometimes overwhelms me. Sometimes I even cry when friends or acquaintances talk about the imminent and positive future – here I quickly realize that this is going too fast for me and that I am not even here at this moment. Likewise, I also get laughing fits and get overwhelmed by situation comics … as I just described with the NASA idea … Here my mind sometimes turns with me and I just go with it. These are the nerves and I think that’s normal. I just let it happen. Because the bottom line is that I’m just very, very happy to be allowed to fight.

The chemo probably starts on 28.02.2019. I will keep you up to date.

Oh, I’ve been asked a couple of times for pain now: no, I do not have any. Yesterday I had a little bone pain, but not worth mentioning. On the other hand, I let myself be given something and I felt better immediately. I’m pretty tired and exhausted. – Apart from the mood swings;), which I could ascribe a little bit to my personality. Or just the overall circumstances, because it’s really an exceptional situation, which I experience here. I have not experienced any pain or scary events yet, nor have I had any experience with my fellow patients.

Have a nice evening and Spokoynoy nochi! ⭐

Monday, 25.02.2019

So ….. that would be done now.

Contaminated sites are shaved …

Aaaaaaaaand my great horror: the ZVK is done!

Was not really bad. You just have to relax. One nurse hold my hand, the other took care of the hose.

So. Now I’m still a little humid from the tranquilizer and I’ll sleep a little 🙂

Sunday, 24.02.2019

Hello my dears,

I’ve been in Moscow for a week now. What happened, where do I stand and how am I?

The examinations were completed successfully and evaluated the next day. This day I used to visit my dear mom in the hotel … What an exciting day that was!

No, that’s not Mama’s hotel;)

But it is a small leisure and cultural center next to the hotel. You can visit a candle workshop, there is a bread museum, etc. We were in it for a short time, I bought a Matryoshka (the background of which I will tell you a few posts later) It should document my healing process A great idea, the wonderful man who recently entered my life, I’ll tell you exactly what the Matryoshka is all about when my stem cell birthday is up to date).

Then it went to the mall to buy milk, crafting material and a phone card. Since then I have left the forces and I once again realized how glad I am that the treatment starts now …

Back at the hotel I had a delicious Coco Jambo cocoa with marshmellows and a piece of meringue! I love meringue! I did not have any more, absolutely great.
And then we actually wanted to take the bus back to the clinic – to get routine and not to go by taxi. Although it costs almost nothing here, but bus travel is simply more useful for this long period. Unfortunately, locating the stop on Google Maps did not match reality. And so we have long been erring through the area, accompanied by the Russian ice wind. After we had walked much too far and the few Russians, who understood a few words of English, had sent us farther away, my legs wanted to surrender the second time – and my mood has given up accordingly – if we then At least they would have found a bus. Nothing. Well. With a lot of noise back to the hotel.

There we met Kristin from Norway and her husband in the lobby, I know them both from Facebook and we met them yesterday. Kristin has her treatment at the same time as mine. Both are sooo nice and full of good energy. Kristins Göttergatte organized two glasses of champagne and the world was fine again! On life, on success, on Moscow and on this beautiful, but exhausting day! 🥂
Phew … – I’m right back to the clinic by taxi. Finally feet up!
The clinic is state-controlled, fenced, secured by gates and guards. Di crime was very high in Moscow until the 90s, there were many gangs and raids. Since the guards, who by the way are merely present and at least not obviously armed, the situation has eased today and you just feel very safe. I came to the clinic more or less easily with my document in hand. Inside, I realized then that somehow there is no main entrance … There is no official entrance at any of the many houses … only locked side entrances. So far I have only been guided underground, so I had no idea WHERE I am or had to go. On my way out today I was accompanied underground to the driver … Now I was standing on an unknown dark clinic area without lights or entrances. So again wrong around (I had only just, juchä and stick with love legs 🙄). Oh man. And then I met a woman, whom I held against my written in Cyrillic paper “hematology”. She then took me through one of the side entrances to a keeper. He was very friendly and motivated to accept me … I then told him that I have already been accepted! I just want to go to my room. I should please wait, the recording is not immediately, you have to wait …. I AM already recorded!
Beloved, what a day that was. Eventually, I reached my room and lay in my bed. 🙏Oh man.

The examination results the next day were positive. I’m very healthy – except for the MS. The treatment is therefore nothing in the way. I was again informed about the risks. And I was told that the MS is not cured but stopped. It’s an indefinite stop – maybe 1 month, maybe 1 year, maybe 10 years … maybe 20 years. And yes, there have also been patients whose MS did not come back, but these were very few. The stop is the goal of the treatment, an improvement of the symptoms are not self-evident. The body is only theoretically and not able to regenerate all lesions. In my brain, I have 20 lesions, including so-called “black holes”. Black holes are encapsulating scarring, the interior of which is hollow. This will not repair, it is and remains a hole. But all these 20 lesions are older anyway, I suppose I got them 10 years ago. Really noticeable they did not make or only briefly. The situation is different with my numerous smaller lesions in the thoracic and cervical spine. Especially the lesion of the cervical spine could cause problems. It is not very wide, but long. If it increases in volume, it can lead, inter alia, to death, e.g. cause a kind of stroke. In fact, it is precisely the lesion that has made me struggling from the beginning and that has simply intuitively never felt harmless to me. I think she is also responsible for my failures and increasing disability. This lesion is one of those that could theoretically regenerate! Well that gives me courage!

The moment the MS stops, the body CAN recover. But he does not do it alone. I will have to train in a very targeted and extremely disciplined way. At the moment I am already looking for a personal trainer or a physiotherapist, who thinks transversely, thinks creatively, is ambitious and makes my goal with his eagerness. I know that stopping the MS is not forever, but indefinitely – I want the indefinite time to be “forever”. I am not looking for exercises that will sustain my vitality, my goal is to release the MS from my life. I do not want to come to terms with this disease, I do not want to compromise with it. And I certainly do not want to align my life with MS. I will fight like a madman and my goal is to win. That’s why I’m here in Moscow. I try to achieve the best possible. And that’s why I’m looking for a trainer or therapist who fights hard with me. This will be the third phase.

But back to phase two 🙂 After signing the contract on Thursday, Friday started directly with the mobilization of the stem cells. I receive a cortisone infusion in the morning. In the evening at 11 pm and at 3 pm at night, they give me a G-CSF (granulocyte colony stimulating factor) injection to stimulate the stem cells to leave the bone marrow and enter the bloodstream. The goal is that they are then fished out of the blood and frozen on Tuesday before the immune system is completely destroyed by chemotherapy.

On Friday, the 22nd of February, my treatment started. I do not notice any side effects. Every now and then it pulls in the bone, but that could also be related to the fact that I lie much in bed …

I embellished my room with your dear lucky charms, handicrafts and blessings … Here are some impressions:

Friday afternoon I had the day off and Alexey asked if he makes a little relaxed sight-seeing tour with my dear mom and me. Alexey is well known to the patients here and is recommended via word of mouth. He knows why the people are here, gets used to the patients, knows that sometimes we are tired without it being obvious – he is just very flexible. So first he picked me up from the hospital and then my mom from the Vega Hotel and we went off to the Moscow traffic jam. But even in a traffic jam Alexey knew so many interesting things to tell; not only typical facts, but also social conditions, which was really interesting.

Our first stop took us to the Space Museum, which I wished for. Anyone who knows me knows that I love the vast, fascinating universe in which we can just live and love in the middle of it and make everything possible, what we want – because after all, we are in the universe! Kling diagonally, but corresponds to the fact. 😉

We were also in the simulator and have met a few missions in space.

Really funny was that in the end I had scored much less points than the seat sat on the nobody 🙂 Fascinating! Or quantum physics? 😉

Then we were in a really nice Ukrainian restaurant for dinner. The food was great! And the ambience was right.

The winter in Moscow is said to be very mild this year … So we only spent a few seconds in Red Square and in front of the Kremlin … Alexey wanted to know if we were cold. I’ll say it like this: Freezing … hm – my face was just in pain right away. I have not had this “freezing” phase here yet. Honestly, it hurts right. 🙂

Then we were in the famous GUM, the oldest shopping mall in the world.

Unfortunately we did not have much time because I had to go back to the clinic. But I have not missed buying Russian vodka – I think that must be! In Germany I would like to initiate this trip after a while – in a Russian way!

Well … it was a wonderful day! We had a lot of fun and Alexey is so open and straightforward, friendly and funny – I really enjoyed this day. He said such medical treatment needs good and positive energy – and he has absolutely communicated that to me through this day. On soft feet and with a wide, satisfied smile, I returned to the clinic. I was greeted warmly and a few minutes later I received my first injection for stem cell mobilization. It starts now ..

Yesterday and today I have paused a lot and let the last few weeks reminisce. It’s just great what’s happening here and under how many good stars it all stands. I feel so happy!

Tomorrow morning my hair will be shaved off. That’s okay, because they will fail after treatment anyway. It is part of the process for me because I want to renew everything. Then I get the central venous ether in the large jug, which pushes me a thick tube into the atrial chamber of the heart. This access allows the fishing of the stem cells. Did I tell you about my needles? I think tomorrow is the cream da la creme of a needle …

In fact, that moment is the one I am most anxious to resolve because of this treatment. Everything else I get a grip on … but this ZVK puts me in fear, which I find it difficult to reach and control. But … the doctor has promised me twice the amount of local anesthesia and the double dose of sedative … I’ll try to brave it.

I send you greetings in the spring … When I come back, everything will live anew and blossom. That’s the right energy to be kissed by life again. I look forward to it! Joy hardly describes it. I want to thank each one of you with a very deep heart that I am allowed to be here, that I am allowed to face my fears that I may fight! Thanks alot!! It’s my big, deep HEART THANK YOU !! For what could you be more thankful than for the chance to fight for your life. And the fight has begun … Tomorrow with the Venecatecaster I face a great fear – while I take your blessings, your good thoughts, your confident, sympathetic looks, your motivational words and sometimes very open conversations, your heartfelt hugs (of it me so many!), yes, all these countless and so valuable encounters I take tomorrow to help in this moment! Breathe in these memories a few times and imagine this moment. Many, many thanks!

It has so incredibly many positive and loving broken into me. I sucked it all up and it accompanies me here in Moscow. HEART YOU!

February 19, 2019

Good evening, dear ones, or Dobryy vecher!

I arrived in Moscow yesterday and was received very, very warmly! A driver from the hospital picked me and my dear mom from the airport and drove us first to Mama’s Hotel and then to the clinic.

Anastasia welcomed us directly, as warmly and happily as many patients described her to me. Anastasia is the lady who takes care of everything organizational. And she does that great. I am now here for a little over 24h and I meet her in all places: during the examinations she takes a quick look inside or even when changing my room air filter, my mother had problems with the entrance and she came to the gate to fix it. She is also the one who organizes the registration. She is just always and everywhere, speaks fluent English, has humor and is so full of positive energy!

I feel so comfortable here! Yesterday evening I was asked by the driver when saying goodbye, if I am afraid – No, I had just yesterday very good luck in the stomach!

It was an exciting and briefly overwhelming feeling to get on the plane and to look back on the stairs …

And now I am here. In my little but fine magic ball room.

Here I will be also during the isolation. So I’m allowed to “set up.” Tomorrow I have my day off and I’ll see that I get some crafting material to decorate the room with all your lovely cards and talismans. Let’s see how things can be Designer in here.

The room is practical. I have a fridge and a kettle. And a microwave, because the food can be reheated well during isolation to destroy germs.

I also have a private bathroom with a shower. And a nice window, through which you can see a few trees and the sun.

The examinations have been running since yesterday evening: ECG, ultrasound, blood, urine, MRI, lung volume. Small anecdote from this morning: I fell asleep, zack door open, sister came in (hood, mask, laughing eyes, no English, only Russian): loooooooooong cotton swab in hand. I first opened my mouth wide for saliva …

“No no no …” and put the thing in my nose (!) until I do not know where … !! Ouch! 😂😂😂😂 Good Morning Sunshine!! Haha, she had to laugh, too. Surprise effect is called that. And I was awake!

Tomorrow the results will be evaluated. There will also be a birthday tomorrow. Someone has successfully completed his stem cell transplant and it is the tradition of the house to celebrate this in a small ritual. I will then show you pictures of my second Birthday in a few weeks!

On Thursday, the results will be discussed. And on Friday morning, the mobilization of the stem cells begins. In the afternoon I do a little sightseeing tour. And on Monday or Tuesday, the Central Venous Catheter is placed on my neck … I can not even think about it. This is my only personal and greatest fear regarding this whole procedure here … I have this pinpoint phobia (which I always bravely defy on the arm) – but CVC on the neck … well, I’m fighting for courage internally!

When the CVC day is over, I can relax inside and enjoy the treatment. Yes, that’s right: enjoy. I am really indescribably happy to be here!

07th February 2019

Dear Ones,

So … now it has actually taken quite a while until I write something again.

Thank you for your heartfelt thanks to my friend from the past, Ilka Bresch (former Seehawer) for her beautiful gesture! Ilka was completely taken by surprise, that the money had come together so quickly – and also sad, because she had failed to donate. That’s why I suddenly got a big package with beautiful fresh flowers that I was really looking forward to !!!

What a beautiful gesture 💜  I love flowers, but should be careful after treatment because they harbor the risk of infection. All the more beautiful that I am allowed to enjoy another nice bouquet!

Many thanks to Bellissima, who set up a donation box for me on my own initiative and collected it for me.

You are so great and so warm 💜, many thanks for that !!

There are only 11 days until my departure …😬✈️

I am accordingly nervous and looking forward to all that is to come. I’m a member of a Facebook group of people who have been, are or want to be up-to-date in Russia. I am currently intensively exchanging ideas with these people, asking questions and keeping a close eye on how the current patients on the spot are doing. And there comes a certain anticipation! Not necessarily before the ordeal, which at times can be quite painful. My hematologist told me the day before yesterday that stem cell mobilization is particularly painful – but to be perfectly honest, after being worried for a moment, I now take the attitude that the pain will show me how the MS dies. That’s how I treat it. And that may hurt! And I’m looking forward to the time afterwards !!

Yes, the countdown is on …

I am so happy about the financial surplus, because with it I could do some useful things:

💰 My dog Miko got a veterinarian all-round check!

… to make sure that he is healthy when I return with my low-function immune system.

This resulted in the deadly dog disease Leishmaniasis, which is already noticeable in the form of small skin lesions. Untreated, it not only leads to death, it is also contagious to immunocompromised people. What luck have we noticed in time and will treat now !! Although the disease is not curable, but it is insulated. My Miko … shares with me faithfully the event of a bad news.

💰 Another important measure is the disinfection of my apartment.

As I write these lines, my apartment is being scrubbed with disinfectants. One day before my return, a special cleaning company will again disinfect my apartment with a H2O2 device. For this purpose, the windows and doors are sealed and then using H2O2-mist effectively against viruses and bacteria.

My apartment will be deconcentrated professionally, so I can come back a day later almost without hesitation.

Many thanks for your generosity, so that not only the treatment, but also a perfect aftercare is possible!

The day before yesterday I got my visa. The money transfer is still ongoing, as there were some technical complications from my bank. So I had to go through another bank, which had to be verified first, etc. This is now done successfully yesterday, now hopefully the money will be delivered immediately to the recipient. But until this process is complete, I remain tense.
And then nothing stands in my way …

Here you see a really successful Swiss report of about 30min about the stem cell transplantation in MS! It’s all about the clinic in Moscow – here you can get a good impression of where I will be. Also my doctor Dr. med. Fedorenko is shown. And it’s about the admission problem on the example of Switzerland. The report is from February 2018. Since July 2018, the hoped-for register study is finally being carried out. The big hope is that this study will be approved.

A very interesting report with which I could not identify more. Look at him! It is at times bissi cumbersome because of the swiss-german, but the reporter speaks understandably;)

Here the link:

https://m.srf.ch/sendungen/puls/radikale-ms-therapie-wie-weiter

January 24, 2019

Thank you very much to Alexander Hoffmann for sending me a small article in the Weinstadtjournal.

Here the link: Phase 2 *

(*translation:

At the end of November my big fundraiser started to realize my special treatment in Moscow … 50.000 €. A sum that I could not possibly raise alone. A sum that would give me the chance to restart my sick immune system with a stem cell transplant to stop my MS.

To show myself so offensive and to ask for donations cost overcoming. I did not want to feel like a victim under the term “donation”, nor did I want to be outrageous with asking for money. But I just dared, on 19 November 2018, I sent my flyer in public. What followed, I still can not really understand. I received prompt response, consistently positive. My flyer was largely shared, I received blessings and blessings known by me, but especially from me completely unknown people. And there was money, large and small amounts from many, many people.

Only eight weeks later I have the sum together. I’m still totally overwhelmed by the incredible response. I got the invitation to charity events, the Main-Taunus-Foundation supported me and even the private television came to me. People have joined forces and gathered for me on my own initiative. I was allowed to set up my donation box and show my presence. In this short time not only did I get such an immense amount of money together, I also gained countless valuable encounters and friendships. Who accompanies me during this time is automatically very close to my heart. It is a very special time for me, with many fears and hopes that could not be greater.

The first phase of Katjas-Chance has been successfully completed. Bigger and more beautiful than I had dreamed it. The most beautiful have been the personal wishes of so many people whose positive energy now accompanies me in the second phase. Obviously I do not do this alone, but I am accompanied by a big WE.

In the middle of February, my plane takes off to Moscow, to the clinic – and thus to the chance for my new life. I’m preparing for it. Above all, it is important for me to say goodbye to the disease MS already now. I think, the psyche plays in the whole process certainly not insignificant role. And so I explain to MS that I did not identify with her and that she was just a visitor who has to leave now. The rest will be done by doctors in Moscow. I am confident because the chances of success are around 80%. But also because so many people have shown me that I can be confident. It is not only my own confidence, but also the obvious confidence of all those who have made it possible for me to get to Moscow – and for that I say HEART THANK YOU – a thank-you that comes from the very bottom of my heart.)

Dear Ones, Your Wise Words and Your Support continue to keep up.

Thank you:

I would like to thank the grandfather of Donata Ziema, who celebrated his 90th (!!) birthday on the 16.01.2019 and wished his guests to donate to me. On this special birthday another unbelievable 1500 € have come together!

I will be able to use this surplus very well for the time after the treatment – many dear HEART THANKS, that I am supported not only to the second phase, but also sustainably, to secure the expenses for my recovery … that is more, much , much more support than I had hoped!

And at the same time it is beautiful. And this miracle and all the other wonders that happen in this particular time, I take with me to Moscow and let them continue to work there 🙂

Many dear heart thanks!

• Gerda Fluck
• Thea Anonym
• Alexandra Micket
• Christel&Georg Pietsch

Many heart thanks also to the colleagues and the residents of the dorm St. Heinrich Schloß-Neuhaus, who have collected for me in a piggy bank and accompany me with love and motivational words! Are you great!

I thank you for your comprehensive and lasting support in this time, which is so special and valuable for me!

Oh well. As of today, there are only 25 days left until I enter the clinic … Wow. The last time was quite fast and overall everything is just a real roller coaster ride. I am happy. But I’m also pretty tense, although I try hard not to be. But I think that’s probably completely okay;)

Yesterday I booked the flights …!!

And today I finally got all the visa documents together and brought them to the post office. Also, I was at the dentist – Inflammation in the mouth can have immense consequences under chemotherapy. But everything is in perfect order – next week is a professional teeth cleaning.

Did I say that I say goodbye to the MS? She is allowed to finish her visit now and she is already packing her bags;)

Dear Ones!

We have reached the amount !!!

ALL MY HEART THANK YOU!

In 8 weeks you gave me my chance! YOU are responsible for giving me the chance to continue to live my life as best I can. Without a wheelchair and without a care bed … THIS is my chance! And I can and I do not have to express what that means to me.

Every single cent of you was a statement. A statement from my MS and a statement to my fight. With these statements in my luggage, I will travel to Moscow on February 18, 2019. 4 years after receiving my diagnosis, I will be in a clinic and restart my immune system. It is a NEW START! And YOU have bought me the ticket for it!

HEART THANKS !!!

There is even a surplus. I’m grateful for the surplus, because it makes things easier. For example, the flight to Moscow with as little contact with other passengers, germicidal measures in the apartment, etc. That’s all pretty important.

Now the next phase of Katja’s chance begins and I will keep you updated.

Many, many, many thanks to all of you who supported me! Take a look at this list! I do not know most of you and yet you accompany me in this way that is so precious to me … THANK YOU!

Below this long list, I have once again put together the Arragements, which have additionally boosted the amount.

You gave me my CHANCE, my chance for life! Thanks alot!! Sooooo many people helped me !!

• Esin Kutlutan
• Andreas Brodmann
• Bianca Zimmer
• TC-Linsengericht
• Anna Emmerth-Luft
• Petra Anonym
• Yvonne Scholl-Kecke
• Jana Anonym
• Zdenka Börner
• Nadine Beine
• Karin Simon
• Janine Lindner
• Danielle Anonym
• Rolf Weinbrenner
• Lina Anonym
• Tanja Hansch
• Eva-Maria&Dr.med.Volker  Wetzel
• Florian Korn
• Elisabeth Westermeier&Familie
• Kathrin Prenzel
• Helga Scharfenbaum-Päplow
• Mark Schaumlöffel
• Elif Türkoglu
• Helena Saslawski
• Matthias Weidlich
• Ulrich Adams
• Elisabeth Westermeier
• Anna Andresen
• Valentina Zelmer
• Christoph Kohnen
• Stefan Anonym
• Larissa Kister
• Eckart Backofen
• Gianni Tomasulo
• Erik Van Alphen
• Dorothee Ursula von Uchtrup
• Alexandra-Maria&Klaus Müller
• Thomas Muntau
• Nalan Vural-Kahhoudi
• Anja Behrmann
• Frank Anonym
• Alexander Zengeler
• Monika Pirron-Bär
• Erika&Martin Müller
• Mustafa Anonym
• Musa Tekeli
• Jasmin Heckel
• Peter Werner
• Nikola&Hagen Anonym
• Hans-Jürgen Anonym
• Björn Lotz
• Sylvia&Sven Böhlke
• Thomas Anonym
• Regina Baier
• Saskia Schäfer
• Özlem Civil
• Kerstin Passmann
• Frank Zimmermann
• Tobi Reuter
• Sarah Anonym
• Stefan Kunkel
• Jasmin Heckel
• Florian Anonym
• Rolf Weinbrenner
• Tanja Wunder-Gau
• Nadine Anonym
• Melanie Fischer
• Demir Demir
• Patrick Roloff
• Dirc Zahlmann
• Handball Spielgemeinschaft HSG WBW Damen
• Inge Ladwig
• Claudia&Stefan Schellenberg
• Petra&Harald Robok
• Kerstin Zacke
• Jens Hoffmann
• Nicole Heinsohn
• Christian Zinkeisen
• Daniela Anonym
• Hubert Kaufmann
• Abdallh Jawhar
• Stefanie&Matthias Anonym
• Hannah Foerster
• Susanne Anonym
• Conny&Otto Trapp
• Sandra Anonym
• Thomas Lindner
• Christin Kotthoff
• Katja Anger
• Svenja Berners
• Irmgard&Karl-Heinz Poppert
• Sina Senßfelder
• Volker Krichbaum
• Dirk Oberling
• Steffi Reitzammer
• Maike Latarius
• Vanessa Anonym
• Julia John
• Katy Marin
• Nadine Theis
• Annika Anonym
• Franziska Schuster
• Sabine Reimund
• Monika&Wolfgang Hoffmann
• Andreas Strauch
• Herbert Töws
• Azize Fluck/Rainer Weilbächer
• Silvia&Frank-Wilhelm Stenmanns
• Gitta Gerhardt
• Daniela Anonym
• Katharina Tluczynski
• Julia Anonym
• Clara Anonym
• Sina Anonym
• Theresa Anonym
• Veronika Lampe
• Melani Anonym
• Fahira Anonym
• Nina Garnatz
• Rebecca Anonym
• Linda Anonym
• Michaela Anonym
• Florian Schönberger
• Annika Fröhlich
• Mona Anonym
• Svenja Anonym
• Tamara Sommer
• Janina Anonym
• Monika Anonym
• Martin Pietrek
• Tatjana Deneke-Wolf
• Felix Surrey
• Sandra Nenninger
• Anja Tulpa-Posch
• Sophia Bengtsson
• Christoph Ebel
• Sabine Roscher
• Sike&Joachim Hammann
• Dr. Miriam Graf
• Katja Dienstbier
• Inge Trenzen
• Dominik Weise
• Ute&Joachim Philipp
• Pia&Mario Ferro
• Isabelle&Nico Ihrke-Brossier
• Horst Twardawa
• Bärbel Viehl
• Helene Theis
• Lisa Schwartz
• Selda&Hueseyin Simsek
• Peter Daube von Mach
• Lisa Anonym
• Julia Huth
• Zarmina Shah
• Lisa Anonym
• Jessica Anonym
• Nicolas Ottermann
• Sanel Bajric
• Susanne Krämer
• Andrea&Jürgen Peiler
• Nadel+Faden! – Kirchenkreisamt Gelnhausen, ev.Kirchengemeinde Linsengericht
• Carola Lachmann
• Sina Doerr
• Sabrina Hammond
• Katharina Anonym
• Carmen&Thomas Will
• Kristin&Michael Kühn
• Rafael Fleischmann
• Karin Fortmann
• Sabine Beyer
• Handwerker- u. Gewerbeverein Hochheim
• Kerstin Ratzka
• Katja Anonym
• Sabine&Marcus Slawik
• Andreas Franz
• Petra Ulbrich
• Eleni Jäckel
• Bianca Roth
• Marion Thiele-Petersen
• Sabine Wedel
• Holger Anonym
• Larissa Kirschner
• Lina&Jörg Ehemann
• Nina Albrecht
• Sabina Baumann
• Sanny Maruhn
• Göksel Ahmed Naksoy
• Sandra Anonym
• Simone Gantz
• Dieter Mehler
• Susanne Weyrich
• Rita&Harald Bott
• Nicole Liederbach
• Dieter Baier
• Ralf Olbrich
• Polina Zawierucha
• Katja Eisert
• Julia Anonym
• Tanja Behnke-Nell
• Constance Renz
• Nadja Kohrs
• Janette Trendel
• Anika Raabe
• Christel Stolle
• Andrea Krauß
• Dorothea Robok
• Manuela Puhlmann
• Ingrid Puhlmann
• Martina&Markus Kosmann
• Reinhard Buelow
• Petra Nold
• Lisa Henningsen
• Steffen Eckert
• Melanie vom Felde
• Selina Bräutigam
• Lotte Schild
• Andreas Anonym
• Markus Happel
• Jutta Schmidt-Garlich
• Katharina Quanz
• Björn Anonym
• Kerstin Anonym
• Bjoern Anonym
• Alexander Foitor Health&FitStore
• Kirstin Rossgoderer
• Josha Eisenhut
• Petra&Ulrich Susenburger
• Laurenz Sauerwein
• Karsten Starker Cert Board GmbH
• Ines Strauss
• Axel Anonym
• Dorothea Anonym
• Andrea&Ralf Seelgen
• Katja Schikorra
• Silke Becker Wilde Wiese Kräuter
• Natalie Nicole Müller
• Sabine Becherer
• Katrin Puhlmann
• Freia Gärtner-Bender
• Bianca Zimmer
• Kerstin Presber
• Franziska Anonym
• Kathrin Reble
• Stephanie Reckling
• Michael Attenhauser
• Kerstin&Michael Van Well
• Adelheid Anonym
• Sabrina Rademacher
• Timea Kovacs
• Jazz á la flute – Isabelle Bodenseh
• Hanna Scheld
• Antonia Höhn
• Jessica Anonym
• Martina&Bernhard Anonym
• Matthias Anonym
• Ulrike Anonym
• Claudia Anonym
• Astrid Schneider
• Sven Scharfenbaum
• Nicole Anonym
• Alexandra Kleiber
• Stefan Engelhardt
• Sina Salmen
• Anika Anonym
• Brian Kowalke
• Hanna Englert
• Gaby Gottschalk
• Tamara Halfmann
• Elisa Wippler/Fennel
• Rene Erimit
• Sam Klinge
• Heinz Eisert
• Eberhard Beißner
• Anika&David Anonym
• Annette Bars
• Sylvia Willer
• Anna-Lena Wetzel
• Ina Hauser
• Nicole Kunz
• V&K Anonym
• Kim&Tobias Schneider
• Hedwig&Wolfgang Blümel
• Sibylle Sauer
• Ute Rödner
• Birgit&Heino von Stern
• Christina Kruse
• Dorothee Isselstein
• Barbara Weber
• Bastian Meier
• Nadine Naksoy
• Sylvia Vogel
• Wilfried Jolmes
• Eva-Maria&Dr.Volker Wetzel
• Ingeborg Holzner
• Peter Ramdohr
• Matthias Meinl
• Myriam Anger
• Jens-Eric Hoffmann
• Jessica Meguin
• Kristina Hauke
• Anja&Jürgen Sünner
• Florin Korn
• Gerhard Kremer
• Petra Treusch
• Sebastian Höck
• Ilona Schwind
• Karin Lange
• Dagmar Lindner
• Ingeborg Lindner
• Sabine Hoffmann
• Max Wroblewski
• Matthias Kringel
• Michael Ahlers
• Christian Beaury
• Patrick Habbel
• Katrin Götze
• Katharina Bretzke
• Sandra Schmidt
• Siri Anonym
• Christiane Emontz
• Musa Anonym
• Anna Engelmann
• Walabyeki Thomas
• Uwe Anonym
• Linda Schneider
• Luisa Liebtrau
• Alfred Pitz
• Robert Lindner
• Ilka Liebmann
• Simon Albrecht
• Irene Günz
• Nadine Anonym
• Axel Landau
• Frank Anonym
• Monika Salzmann
• Karl-Heinz Schneider
• Rainer Burger
• Jennifer Schett
• Stefanie Blümel
• Petra&Pavel Belik
• Martin Baumann
• Renate Antony-Germann
• Dirk Schneier
• Beatrix Preß
• Gabriele Anonym
• Luisa Anonym
• Barbara Leonelli
• Daniela Rettig
• Maik Matthäus
• Talisa Schmidt
• Peter Neufeld
• Claudia Anonym
• Sarah Walter
• Petra&Thomas Hieronimus
• Sabrina Key
• Maike Anonym
• Markus Fischer
• Nicole Anonym
• Kerstin Twardawa
• Nadine Martin
• Claudia Wittner
• Oliver Massag
• Barbara Roll
• Miguel Mendes
• Ursula Anonym
• Heike Behner
• Barbara Wolff
• Vanessa Anonym
• Romy Uhlmann
• Britta Germann
• Tanja Weinhardt
• Karin Anonym
• Rebecca Deimel
• Domenick Apel
• Eva Gemmel
• Martin Hutsch
• Daniela Süß
• Stefanie Witzke
• Katharina&Dieter Czejka
• Lena Kopp
• Alexandra König & Jens
• Heidi&Wilfried Eberling
• Susanne Nowka
• Gabriele Weidenfeller
• Daniel Miltner
• Lena Kuhlmann
• Elke Halla
• Yannick Bals
• Jasmin Laubach
• Alexander Bender
• Jakob Harder
• Tamara Hartmann
• Karin Zinkeisen
• Ilona&Frank Hildwein
• M. von Wolffersdorff
• Carmen Kaul
• Katja Badeck
• Kerstin Herzberger
• Feliza Cortés Bandes
• Michelle Kaltenbach
• Holger Lapke
• Philipp Czejka
• Miriam Putschar
• Nina Essel
• Susanne Krämer
• H.&T. Anonym
• Sonya Turki
• Denise Kühnreich
• Mathias Radden
• Ann-Kristin Huth
• Thomas Stock
• Stephanie Leese
• Nazan Anonym
• Franziska Knaack
• Charlotte Pech/Deryckere
• Käthe Anonym
• Holger Schäfer
• Valerie Kastner
• Thorsten Kaus
• Nina Pulcher
• Alexander Gottlinger
• Sina Salmen
• Franziska Thierfelder
• Carolin Hoermann
• Karla Schaffner
• Piero Kittel
• Wolfgang Anonym
• Katharina Scharfenbaum
• Christin Stoye
• Tamara Anonym
• Markus Anonym
• Andrea Anonym
• Falk Anonym
• Yvonne Zitzmann
• Felix Braun
• Lisa Wüst
• Stefan Buch
• Ulla Bitsch
• Anna&Hauke Wetzel
• Nicole Kunz
• Ramona Schwendner
• Ingeborg Holzner
• Lucie Sauerbrei
• Maria Wolf
• Caterina
• Katharina Harder
• Helene Harder
• Moritz Muck
• Verena Ems
• Christian Braumann
• Jasmina Choteschowsky
• Johanna Schneider
• Daniela Braumann
• Aileen&Felix Überschaer
• Theres Rommel
• Sebastian Kohl
• David König
• Michael Kloth
• Berit Stolbinger
• Stefan Anonym
• Sarah Doerfeld
• Daniel Krell
• Brigitte Borutta
• Marion Clemens
• Julia&Nico Schneider
• Umair Ahmad Bajwa
• Jennica Surauf
• Christina Anonym
• Sebastian Lapke
• Johannes Römer
• Caroline Anonym
• Sabina Anonym
• Petra&Harald Robok
• Sören Schuster
• Melanie Anonym
• Feliza Cortés Banda
• Jan Fetzer
• Sina Senßfelder
• Ann-Kathrin Gundermann
• Lisa Eiserloh
• Cornelia Unger
• Katrin Klinge
• CacS
• Fabian Huwe
• Agathe Rylow
• Peter Strozyk
• Anne Hock
• Nicky&Curtis
• Angela Reitmeier
• Agnés Wintermeier
• Jessica Knaup
• Janine Lindner
• Alexander Pohl
• Thomas Fischer
• Melanie Klein
• Melina Ottermann
• Alexander Magiera
• Sandy-Alexander Brenner
• Martin Stumpp
• Stefan Mayer
• Jeanette Harder-Herve
• Petra Baar
• Christian Scholz
• Tolga Özkol
• Karolin Bertram
• Volker Budde
• Anna Kretschmar
• Stephan Vogt
• Jonathan Wangler
• Ilona Jahnke
• Erik Frischkorn
• Iris Scharfenbaum
• Christiana Estl
• Jessica Schmitt
• Alex Anonym
• Marina Roßkopf
• Marc/Inga Schäfers
• Abdulrahman Rashwani
• Carola Hübner
• Robert Hertel
• Katja Anger
• Evelyn

thanks a lot:

• the Main-Taunus-Stiftung and my district administrator Michael Cyriax for his generous idea as well as Mr. Herzog for his laborious efforts to put this idea into action! The Main-Taunus-Foundation donated 10.000 €!

Link here

thanks a lot:

• the volunteer fire department Bauschheim and all the people who supported me on this day! It is in just 3 hours and wind and rain as much as € 533.70 together!

thanks a lot:

• Koray Events Goddelau and her commitment to collect me 500.00 €!

thanks a lot:

• Family Fabian Schmidt and Weinegg Hochheim to participate in the offer at the annual charity Mulled wine serving! There are 1500 € on this wonderful evening together!

thanks a lot:

Nadja Volkmann from Riesling-Stuben Hochheim and her friends for a loving private fundraiser at the whole 350 € came together!

thanks a lot:

• my dear colleagues from the District Office Groß-Gerau, who have organized a first-class cake bazaar for me at the sum of € 2418.64 have come together! As well as to my dear colleagues from the BSD as well as the finance department, who additionally collected their own initiative, so that another 1017.00 € came together!

thanks a lot:

• My dear friends Christine Kreis and Daniele Di Domenicantonio from the Artemoda La deutsche Vita Hochheim, who tirelessly touted my flyers and offered a great location to socialize and talk!

thanks a lot:

• Marion Ottermann and her colleagues of Peter-Josef-Briefs School in Hochheim of Antonuishaus Hochheim, who have collected 507 € for me!

thanks a lot:

• Biggi and her colleagues from the Wohnheim St. Kunigunde Paderborn!

thanks a lot:

• My lovely colleague Julia Löwen and her  Löwen-Wichtel!

thanks a lot:

• My longtime friend Michaela Waldschütz, who gave me part of their Christmas income, so that total 1222.20 € came together!

tanks a lot:

• Dieter Dee Baier of Radio Rheinwelle Wiesbaden to donate to me for his on the mission tireless call me!

thanks a lot:

• My dear colleague Jens Hoffmann with his video contribution, which has reached many people!

Link here

thanks a lot:

• Lena Kuhlmann for her own initiative to introduce myself to RTL HESSEN, who then sent a very great contribution, thank you!

Link here

thanks a lot:

• my neurologist Dr. med. Christoph Mayer for his willingness to assist me in the above report. As well as for his clear and open words, for his sympathy and for his company.

Many thanks: to sooooo many people!!

January 11, 2019

Hello dear ones, in my last post I had reported that I am physically just a bissi and will ask Moscow, if an earlier date is possible. Well, I have received an answer. My appointment is brought forward. Specifically, this means that I will fly to Moscow next month on the 18th of February!

I am very happy about that, because in between I was worried that I would not be able to do it until April. As long as the walking ability exists, the chances of treatment are very good. And last night I had trouble to come to the pizzeria, which is 140m away.

That’s why I’m very, very happy about the advanced date!

But that also means that I have to transfer earlier, on 31.01.2019. As you can see, I still miss something. And since I now need the remaining money relatively quickly, it helps me:

Fire department!!    Ta tü ta taaaaaaa!!

Tomorrow, on the 12th of January, the annual Christmas tree fire of the youth fire brigade will take place in Rüsselsheim-Bauschheim. The volunteer fire department Rüsselsheim-Bauschheim invited me to be there with a small booth and a donation pot. VERY MUCH!!

So if you want to come over:
Tomorrow on Saturday between 18:00 and 21:00 on the field opposite Globus market!

There is mulled wine, hot Organgensaft, Bratworscht in bread and a big fire bright! 🔥🔥🔥 Maybe you see me riding the broom over it, Schaumermal;) I’ll report!

***

I would like to tell you another nice story. On 12.12.2018, that was the day on which took place in the district office GG the Kuchenbazar, a couple completely unfamiliar to me came to me. Later they told me that they were at the building office and then happened to pass the delicious cake. They ate a few pieces and then talked to me if they could take some flyers to distribute them. They run an event company for weddings and there would always be something … well, why not. There was a knock on my office door earlier this week. I was just talking and very surprised – I did not recognize the two immediately. “Do you remember, we met at the cake, we wanted to donate …” – Yes! And so the two handed me an envelope with 500 € !! Just like that … because they like doing that, they said. I would like to thank with all my heart Songül & Erhan von Koray Events Goddelau

I would also like to thank the many lovely people who have supported me in the background again … A HEART THANK YOU goes to the work colleague of my mom, Elisabeth Westermeier and her family!

It continues to support me so many people. People whose names say nothing to me and who nevertheless accompany me. Special people, also back from work. And so dear neighbors! Thank you very much, with all my heart.

A particularly special person who supported me is Milos Lazic from Frankfurt am Main. Especially because he was still in the clinic in Moscow in September to be treated there. Thank you Milos, that you have contacted me and described to me the clinic and the process in such detail – and consistently positive!

Now that the new date is so close … this donation party feeling is slowly fading and giving way to a certain sincerity. Phase 2 of Katjas-Chance begins. And I know that so many people have brought me into this second phase … many thanks for that. You carried me to this place. Me your untiring support. With your ideas and your own initiatives. That’s so great and it’s such an incredible story! In such a short time we have brought so much money together. I thank you with all my heart that you give me my big chance … that could not be bigger and more valuable. I have only one THANK YOU for it since the beginning. It’s a big thank you and it comes from the bottom of my heart, it’s a HEART THANK YOU. At first it was hard for me to have just this thank you. Meanwhile, I have understood that I can and should accept this support simply – to get well again. It’s not just an amount you transfer or hand over to me. It is a statement. And it is the wish that I can do that. If so many people are keeping their fingers crossed – then I’ll make it! Many, many HEARTTHANK!

• Elisabeth Westermeier&Familie
• Kathrin Prenzel
• Helga Scharfenbaum-Päplow
• Mark Schaumlöffel
• Elif Türkoglu
• Helena Saslawski
• Matthias Weidlich
• Ulrich Adams
• Elisabeth Westermeier
• Anna Andresen
• Valentina Zelmer
• Christoph Kohnen
• Stefan Anonym
• Larissa Kister
• Eckart Backofen
• Gianni Tomasulo
• Erik Van Alphen

07th January 2019

Maybe some of you remember … At the very beginning of my call for donations, at the end of November, a lady so kind commented on my post on Facebook …

(*translation:

I do not know exactly where we know each other here on facebook. I find your diagnosis very sad and squeeze all your thumbs and paws, that it is very soon uphill and then a straight way waiting for you.
It is not nice to know that you are seriously ill and often many things in life seem almost hopeless, but me and everyone else around you sees that you are fighting and strong and you do not want to surrender. I admire you very much !!
I want you to keep going your way! And so I would like to do you a small favor and offer you my help.
I can not feel what you are doing and what a difficult road you have to go, but I would like to relieve you a little bit, at least for a moment.

I’m a trained podiatrist on medical aspects and hereby offer you my foot care, of course with a foot massage. I visit you at your home (Hochheim according to profile) with everything you need for the foot care. Say mobile foot care. Of course, that would be a small gift from me to you, just as encouragement and, above all, as a reminder to always stand on your feet and go further.
Write me a message and we’ll do something if you want.
All the best
Dana)

And today it was time …

Thank you to Dana Köhler!

This was not just a foot care that I got today … dear ones, that was so beautiful! Dana knew a lot about feet. She massaged my feet and was able to sense which region was affected by MS … She said, “Skin reacts, skin responds to touch.” Some places do not answer anymore and without knowing that I gave her a hint, she knew which one. That impressed me a lot!

I realized that my feet have been carrying me through life for 36 years … so naturally and without that I ever paid much attention to them … are just feet – and somehow I found them sometimes also pretty ugly and weird … I learned from Dana that feet reflect a lot of what’s happening in our bodies right now. Thanks a lot for this! I hope they carry me through the world and through life for a very, very, very long time and that I can continue to stand upright on them!

What a great idea! Just before I travel to Moscow, Dana will take care of my feet again … so that I can go my own way well.

A very, very big HEART THANK YOU!

That was such a valuable gift today …, for my special journey.

Thanks alot!!

Meine langjährige Freundin Michaela Waldschütz (ehemalige Gerkens) hat mich auf eine ganz schöne Art unterstützt. Michi alias Mica hat ein Label namens Mica-Design.com …

… and she creates, produces and sells handmade capes and scarves of a special kind, based in Berlin.

For the Christmas market she has donated to me for each sold unique percentage.

Thank you, dear HEARTENDAN !! So total 1222,22 € have come together!

And Wooowww ……. we are almost at the finish! This is so great!!

I can hardly wait Moscow and will write an e-mail tomorrow if I can come earlier. Somehow my legs can not support me so much and my left eye does not like to look so sharp – I’m just glad when it finally starts. And I’m so thankful to you all so, so, so that I can go that way. This is my big and so valuable chance you have made possible for me. As always, I have only one THANK YOU, but yes, it is a HEART THANK YOU! It’s such a deep, big thank you. And I take all your donations, your heartfelt wishes to me and think that this is something very special, what happens to me here in this life. I feel so supported and supported on my way, as I have said before …

The money is almost together (… I still believe sometimes I’m dreaming!). But it is also spent soon … and then only begins my way. And then what? Then you are with your many wishes and greetings that you have sent me – via WhatsApp, via Facebook, by e-mail and by purpose – then you are present. Because that is not so fast “spent”, that remains. And carries. As well as your words in between. Your visits to my office, your phone calls, your small talk in the elevator … your meetings in the café, in the bar .. all this remains very, very long present and just for that I say HEART THANK YOU!

I thank you all, who support and accompany me on my way.

• Dorothee Ursula von Uchtrup
• Alexandra-Maria&Klaus Müller
• Thomas Muntau
• Nalan Vural-Kahhoudi
• Anja Behrmann
• Frank Anonym
• Alexander Zengeler
• Monika Pirron-Bär
• Erika&Martin Müller
• Mustafa Anonym
• Musa Tekeli

A very big HEART THANK YOU!

06th January 2019

Hello my dears,

here in the old town of Hochheim there is a very sweet restaurant, the Rieslingstuben.

I would like to send the owner Nadja Volkmann and her friends a very big HEART THANK YOU! Nadja has closed the Rieslingstuben over the holidays and held a small private party on New Year’s Eve for her closest friends. She set up a nice donation box for me and asked her friends to support me …

I was and am totally touched. This is such a loving action! There are whopping 350 € come together! With all my heart THANK YOU! Nadja has also rounded up with a voucher for the Rieslingstuben. You are sooooo nice, thank you very much !! It just feels so great.

And in the background, I have again supported a lot of people. Thank you so much! We already have a 4 before ……. that’s sooooo incredible! How nice that is !!

• Jasmin Heckel
• Peter Werner
• Nikola&Hagen Anonym
• Hans-Jürgen Anonym
• Björn Lotz
• Sylvia&Sven Böhlke
• Thomas Anonym
• Regina Baier
• Saskia Schäfer
• Özlem Civil
• Kerstin Passmann
• Frank Zimmermann
• Tobi Reuter
• Sarah Anonym
• Stefan Kunkel
• Jasmin Heckel
• Florian Anonym
• Rolf Weinbrenner
• Tanja Wunder-Gau
• Nadine Anonym
• Melanie Fischer
• Demir Demir
• Patrick Roloff
• Dirc Zahlmann

04th January 2019

So dear ones,

tadaaaaaaaaaaa !! It is so far, the RTL contribution was sent today at 18 o’clock. I myself did not find out until this afternoon, otherwise I would have informed in time.

But voila!

https://www.rtl-hessen.de/beitrag/hochheim-katja-schmollack-multiple-sklerose-sammelt-spenden

03. January 2019

Dear Ones.

I wish you a happy and healthy new year! With many beautiful moments and precious moments, as I may experience them at the time … With many dear people around you! … I assure you, the world is full of loved ones. You usually get a different impression because the negative messages are always way too loud. That’s such a pity. Because it only corresponds to part of the reality. The other part is wonderful and consists of loving people who are there for each other – just like that and sometimes without knowing each other. My story is the best example. I have told you my request and promptly I have received your support! And not only from one person, but from very, very many people … and look at what a short time we have come so far. From my I meanwhile has become a big WE.

Today I met with my dear friend Melina Ottermann, who had the order of her mother to give me a surprise from the quorum of the Peter-Josef-Briefs school Hochheim …

I would like to thank Marion Ottermann and her colleagues wholeheartedly for 507 € (!!), which I found in a very beautiful and lovingly designed card!

                           Many, many HEART THANKS!

How wonderful that is !!

So many dear people have supported me over the New Year … many, dear HEART THANKS! I’m still overwhelmed …. yes, that does not stop. I am so overwhelmed by how many names I read, how much support I get … so steadily and tirelessly. With all my heart: THANK YOU!

• Handball Spielgemeinschaft HSG WBW Damen
• Inge Ladwig
• Claudia&Stefan Schellenberg
• Petra&Harald Robok
• Kerstin Zacke
• Jens Hoffmann
• Nicole Heinsohn
• Christian Zinkeisen
• Daniela Anonym
• Hubert Kaufmann
• Abdallh Jawhar
• Stefanie&Matthias Anonym
• Hannah Foerster
• Susanne Anonym

December 30, 2018

Dear Ones,

… well, I wrote a really long post the day before yesterday ….. and then the site crashed! That was bitter! And so you read something about me today.

Year. Not to be confused with menopause;) Menopause is particularly stressful this year, someone told me recently. Nice! Moments that I love :)) He meant the turn of the year.

The year ends. For me, this is always a good moment to review the old year. I always like to do that, that’s important.

Normally I stand each year somewhere at 00 o’clock with a glass of sparkling wine st and stumble on the “new” on the “unknown” – I wonder then what the new year will bring. And so I always try to change the year with a good feeling and to start consciously with positive energy.
The next year will not be so unknown to me, it is planned. And it will be a very, very special year for me …

This year started for me in France. It was a nice holiday, even if I would have liked to go on longer walks. I love the French cuisine, which is amazing! I am always fascinated: the French do not cook, they literally write.
In April / May I was in India, not for the first time. And again I went there to food poisoning. This time, however, unfortunately so complicated that I had to leave prematurely after a hospital stay in Kuala Lumpur / Malaysia. That was exactly one year before my upcoming stay in Moscow. Will that tell me something? No idea. All I know is that I was really impressed by the clinic in Kuala Lumpur. Compared to our clinics here in Germany, this seemed much more organized there. And very modern! Maybe this experience then in retrospect additionally influenced my decision for Moscow – simply because here in Germany not all gold is glittering and unknown countries can positively surprise in this regard.

The summer was hot this year. Heat is difficult for the MS, because the already limited nerve conduction velocity is then even slower. I did not manage the little laps with Miko either, that did not improve in the fall either. So for the first time I looked for a wheelchair. That is hard. It starts, I thought. This neck threat does not sleep. The MS never sleeps, they say. My MS seemed wide awake, now I googled for aids. Finally, I decided to go for a Segway. With the Segway, I can make friends much better, even if I find these things somehow strange and I like the classic walks on foot still best. After all, I’m so around the wheelchair;)

Sometimes I am asked what it feels like to lose power over my legs. That’s difficult to describe, I choose pictures for that. At first it was like running on sand. Like on the beach, when your feet sink in and you have to work hard to put one leg in front of the other. It’s like I’m in the mud now. I go, but not so far – fighting through the knee-high mud is exhausting. Then I have to pause, because I lack the strength in the legs. They also begin to hurt and cramp. At some point I lift the movement from the hip, which is not very pleasant. At the same time, this mud never completely dissipates, even when resting. The legs are always a bit heavier than they should be and the pain remains constant, just bearable.

All in all a condition that is not fun in the long run. Above all, if you think: from now on it can only get better – nothing, from now on it’s only worse. And honestly, where should this lead? The MS sneaks … but she does not sleep. If I’m lucky, she sneaks slowly. I do not have it. I’m 36 and google for wheelchairs, where I was supposed to google for high heels.

So. And then I learned that Switzerland allows standard studies for stem cell transplantation in MS, which pays the local health insurance. That was like a slap in the face. Wake up!!

The risks of MS are predictable and bad for me. I’m aware of the risks of stem cell transplantation and willing to trade it for the risks of MS. It is a chance!

After I made that decision, everything went really fast. I asked in Switzerland, a short time later I asked in Moscow. I said goodbye to Switzerland and chose Moscow. Then I designed this website here and this blog I’m writing on – THANK you, Christian Wulsch, for helping me and helping! In so many! Only yesterday Christian has explained to me the immune system again;) At least what’s known about it. I always have a lot of questions and I like to think. If someone happens to be reading this, who is interested in research, I have a lot of concrete ideas 🤩 and more questions (… that’s for the most part, of course, fun.) To the biggest, not to the whole! 😉)

When I had roughly created the website, the task of the flyer came. And so much else. And suddenly it seemed like a huge mountain, hard to get over. And at that moment, my dear and very special friend Evelyn Lo Schiavo contacted me and called me for a coffee in my favorite restaurant and second living room Artemoda / La deutsche Vita. When I came over, she sat there with a book and a pen: “Katja, we’re starting to work right now, I have some suggestions and maybe they like you, maybe not …” – And then we started. And as I’ve written here before, Evelyn and I worked wonderfully together. Almost without words she put my feeling on paper. It was clear that we needed photos. That’s when I remembered Sebastian Lapke, who provided me with a few hours at short notice. And so everything came into being … And suddenly my flyer was already on Facebook and was diligently shared – Then came the first donations. As well as the first news, many, many positive and loving messages! This is and remains for me an indescribable and wonderful experience, such a valuable experience! You are the people who accompany and support me. Although we hardly know each other or even not, you are part of my special journey! You are the ones who pave this path for me …

After exactly six weeks, we got 37,000 euros together !! Soooo many people have supported me, I have nothing more than a THANK YOU for it. It’s a HEART THANK YOU, the biggest thank you you can think. Because you allow me this great and significant opportunity for life!

And so I’m standing here just before the new year … you’re also out there somewhere, on your cell phones and computers, reading these lines … It’s beautiful, beautiful, that we’re going to move on together in a different way this year , I will not toast with a glass of sparkling wine at 00 o’clock, but with a glass of champagne 🥂✨ Many thanks to Petra Robok for this fitting present! “I wanted to pick it up until I got the € 50,000 full, but I think it’s more effective and significant to start the New Year!

✨I wish you a good and beautiful start to a new year! ✨🌠

✨✨💃🏼🥂✨✨

My HEART THANKS go to all these many dear supporters, who pave my way also at the turn of the year.

A friend of my mom, Biggi has made this really so pretty gift for me together with her colleagues from the dorm St.Kunigunde in Paderborn.

Many, many HEART THANKS for your steady, tireless presence and support!

• Conny&Otto Trapp
• Sandra Anonym
• Thomas Lindner
• Christin Kotthoff
• Katja Anger
• Svenja Berners
• Irmgard&Karl-Heinz Poppert
• Sina Senßfelder
• Volker Krichbaum
• Dirk Oberling
• Steffi Reitzammer
• Maike Latarius
• Vanessa Anonym
• Julia John
• Katy Marin
• Nadine Theis
• Annika Anonym
• Franziska Schuster
• Sabine Reimund
• Monika&Wolfgang Hoffmann
• Andreas Strauch
• Herbert Töws
• Azize Fluck/Rainer Weilbächer
• Silvia&Frank-Wilhelm Stenmanns
• Gitta Gerhardt
• Daniela Anonym
• Katharina Tluczynski
• Julia Anonym
• Clara Anonym
• Sina Anonym
• Theresa Anonym
• Veronika Lampe
• Melani Anonym
• Fahira Anonym
• Nina Garnatz
• Rebecca Anonym
• Linda Anonym
• Michaela Anonym
• Florian Schönberger
• Annika Fröhlich
• Mona Anonym
• Svenja Anonym
• Tamara Sommer

December 24, 2018

Dear Ones,

Yesterday, one day before Christmas Eve, I had a really nice evening: I thank you for this wonderful evening yesterday in Weinegg Hochheim!

My favorite winemaker Fabian Schmidt had approached me a few weeks ago when walking and suggested me to include in his annual charity mulled wine …

In the beautiful winery Weinegg in the heart of Hochheim, in the old town …

… is the Vintothek.

With delicious mulled wine and lard bread we spent a great evening with lots of good mood in great company!

Despite the rain, a lot of people came. And there were really nice encounters again. It was just a good evening with good wine, nice atmosphere and great atmosphere. And I was very, very happy that in this context, I had the opportunity to attach my request.

It is not easy. I’m not used to holding a microphone in my hand. And on point more or less out of the ordinary in a few words to expose my situation … Phew – it’s a heavy topic and every listener may react differently … – and then ask to help me financially … ,

... at first with soft knees!

It was not that bad 😉

I looked in such open and friendly faces. Thanks, people!!

And that’s the way it is all the time.

In my offensive I also expected negative reactions … but it has been consistently positive so far.

I am caught and carried through this time.

It’s kind of a difficult topic and I did not expect so much understanding and goodwill and am always overwhelmed by it. There is just sooooo much positive energy! So much impelling power that comes from you.

Thank you so much, many HEART THANKS!

★ Today is Christmas Eve. ★

I wish you a wonderful Christmas and / or happy holidays! Have a good time!

This is also the end of the year and the moment to reflect on how everything was like that and who we all met …

… and for me it is simply amazing what is happening. The occasion is not so tingling … but it also brings me to this truly wonderful experience. There you are, who accompany me … I wish you a Merry Christmas! ★

December 21, 2018

Dear Ones,

The finance department of the district office once again collected in own action and yesterday handed me this surprise box …

For many dear HEART THANKS! I was really happy and it’s just great to see this active and warm support – thank you so much!

My dear colleague Julia Löwen has told me that my call for donations has led her and her siblings as well as their spouses to celebrate their annual elves differently this year. And so they did not want to present themselves this year, but to give me presents.

I would like to thank all the dear Löwen Elves !: Julia & Marcel, Jenny & Herbert, Agi & Benny.

Beloved, thank you again and again for your continuous support, which brings me closer to my goal and closer! Many thanks for that! You are paving the way for me so special and valuable way … we go together. HEART THANK YOU!

• Janina Anonym
• Monika Anonym
• Martin Pietrek
• Tatjana Deneke-Wolf
• Felix Surrey
• Sandra Nenninger
• Anja Tulpa-Posch
• Sophia Bengtsson
• Christoph Ebel
• Sabine Roscher
• Sike&Joachim Hammann
• Dr. Miriam Graf
• Katja Dienstbier
• Inge Trenzen
• Dominik Weise
• Ute&Joachim Philipp

18 December 2018

Dear Ones,

Today I was surprised by my beloved colleagues from the BSD (Special Social Services) …. I received an invitation in my Outlook calendar for this morning 9 o’clock with the subject “Dagobert and confetti” .. this morning 9 o’clock expected me in my office then a sparkler, sparkling wine and a bulging treasure chest ….. with as much as 870 €! And chocolate!

So lovingly and happy I started today in the day …

Although I thought in between that I am now very prepared .. that has me now but again overwhelmed. Many, many thanks! For so much sympathy, goodwill and support! THANK YOU VERY MUCH!! HEART THANK YOU!

Later that day, I was allowed to hug our lovely cleaners Pia and Mario Ferro … or rather, me … Also, I got support from both of them, lovingly packaged in a beautiful card – and a warm hug with such loving and supportive words … HEART THANK YOU!

And now I’ve come home and see again so many names that support me as well … dear friends, whom I see far too seldom, dear colleagues and colleagues, strange names to me … – you are all part of my great journey into a new life that’s already started .. That’s such a great opportunity. Thank you so much for your concern and your energy! Sometimes I’m a bit afraid of what to expect in the context of treatment – but this fear does not come through to me right, she just touches me briefly. That’s how it feels. Because I’m so thick packed and bedded in so much love, sympathy, goodwill and positive thoughts … MANY, THANK YOU THANK YOU from the bottom of my heart that you prepare me this way.

I feel connected to so many people in a valuable way at the moment, that really is really beautiful. THANK YOU!

• Pia&Mario Ferro
• Isabelle&Nico Ihrke-Brossier
• Horst Twardawa
• Bärbel Viehl
• Helene Theis
• Lisa Schwartz
• Selda&Hueseyin Simsek
• Peter Daube von Mach
• Lisa Anonym
• Julia Huth
• Zarmina Shah
• Lisa Anonym
• Jessica Anonym
• Nicolas Ottermann
• Sanel Bajric
• Susanne Krämer
• Andrea&Jürgen Peiler
• Nadel+Faden! – Kirchenkreisamt Gelnhausen, ev.Kirchengemeinde Linsengericht
• Carola Lachmann
• Sina Doerr
• Sabrina Hammond
• Katharina Anonym

16 December 2018

Very much thanks to Jens Hoffmann, who surprised me with this creation, which is already being shared diligently on Facebook.

16 December 2018

Hello my dears,

a few days ago   was with me … !! or we met in my second living room, my favorite bar Artemoda / la deutsche vita.

Next week I will hear the broadcast date. It will be a small fine contribution of about 2-3 minutes in length, which is broadcast at 18 clock in the program RTL Hessen. I’m really excited!

Here’s how I’m going to be cabled like James Bond:

As soon as I know the broadcast date, I will tell you here!

Today, the first snow fell and the Miko and I have made a nice round through the vineyards. Me on my Segway (slippery) and the Miko as always barefoot. It was nice! It is the first time since the beginning of the donation that I have no appointments or meetings – and so I could relax a bit. Today is the fourth Sunday since then my fundraiser is under way … and we have actually already 3/5 of the sum together! So much has happened in the last few weeks. I had many nice and special encounters. So many people have sincerely wished me all the best … the first few days I have struggled with the draft – on so much warmth and goodwill I was just not prepared … and that was just fine! So I let myself be overwhelmed and it was and remains just beautiful!

Thanks alot!!

• Carmen&Thomas Will
• Kristin&Michael Kühn
• Rafael Fleischmann
• Karin Fortmann
• Sabine Beyer
• Handwerker- u. Gewerbeverein Hochheim
• Kerstin Ratzka
• Katja Anonym
• Sabine&Marcus Slawik
• Andreas Franz
• Petra Ulbrich
• Eleni Jäckel
• Bianca Roth
• Marion Thiele-Petersen
• Sabine Wedel
• Holger Anonym
• Larissa Kirschner
• Lina&Jörg Ehemann
• Nina Albrecht
• Sabina Baumann
• Sanny Maruhn
• Göksel Ahmed Naksoy
• Sandra Anonym
• Simone Gantz
• Dieter Mehler
• Susanne Weyrich

December 12, 2018

Oha, dear ones, it was outstanding! The colleagues of the district office, interdisciplinary (!) – (WOW – how nice I think that !!) – came with great appetite – the onslaught was enormous. Many, many, many thanks for this active participation!

Also the clientele was lively and used on their way through the house like the treasures – it was fun, thank you!

And so today, a whopping € 2418.64 came together !!!

THANKS to the many helpers who have put their time and effort into operation!

THANKS to the bakers;) – Dear Colleagues, amazing what you have conjured up there. The counter looked sooooo good !! So many different treats, unbelievable to the eye in this abundance and creation! And it was delicious !! (I also enjoyed one or the other piece :-p).

THANKS to the dear donors, who have accepted our offer so generously !! …. 2418.64 € !!

And THANK YOU for the nice, valuable conversations I had in between … there were such beautiful encounters – there are many, wonderful people !! So nice to meet you! Sometimes it was only small moments, sometimes without words, just eye contacts, which transported so much warmth and sympathy that I sometimes had to cry …. beautiful! Many, many THANK YOU for that!

And … I really do not need an advent calendar this year … – your support will come every day! Beloved, you have rung in the mountain festival;) … we have cracked half! There are so many names again … Familiar names from earlier times … known and unknown names .. THANK YOU – it’s a very, very big HEART THANK YOU !!

• Rita&Harald Bott
• Nicole Liederbach
• Dieter Baier
• Ralf Olbrich
• Polina Zawierucha
• Katja Eisert
• Julia Anonym
• Tanja Behnke-Nell
• Constance Renz
• Nadja Kohrs
• Janette Trendel
• Anika Raabe
• Christel Stolle
• Andrea Krauß
• Dorothea Robok
• Manuela Puhlmann
• Ingrid Puhlmann
• Martina&Markus Kosmann
• Reinhard Buelow
• Petra Nold
• Lisa Henningsen
• Steffen Eckert
• Melanie vom Felde
• Selina Bräutigam
• Lotte Schild
• Andreas Anonym
• Markus Happel
• Jutta Schmidt-Garlich
• Katharina Quanz
• Björn Anonym
• Kerstin Anonym
• Bjoern Anonym
• Alexander Foitor Health&FitStore
• Kirstin Rossgoderer
• Josha Eisenhut
• Petra&Ulrich Susenburger
• Laurenz Sauerwein
• Karsten Starker Cert Board GmbH
• Ines Strauss
• Axel Anonym
• Dorothea Anonym
• Andrea&Ralf Seelgen
• Katja Schikorra
• Silke Becker Wilde Wiese Kräuter
• Natalie Nicole Müller
• Sabine Becherer

December 10, 2018

Dear Ones,

On Wednesday, at my workplace, so in the district office Groß-Gerau down in the lobby, a fundraiser instead. Thank you very much to my eager specialist service and my superior Elli Markloff, who launched this idea! I have already heard from some people with MS that the disclosure of the disease from their superiors has met with displeasure – I can say with happiness, great joy and gratitude that my leadership has treated me with great benevolence and understanding from the beginning is! Due to the planned stem cell transplant I will be out for a few months … Ms Markloff not only accepted my decision, she immediately took action and initiated this donation campaign. Many many thanks!

My dear colleagues bake over 30 cakes and pies! There are also delicious waffles! WOW, you are sooo great !! That you give so much effort and support me so actively …. THANK YOU! It was created by you a deployment plan: From 12 noon to 17 clock will give me some colleagues in private (!) Time alternately active help. And against any donation we will offer cake, cake, waffles and coffee. Incidentally, the coffee is provided to us by the company MiRoGH – thank you very much!

Tomorrow (Tuesday) there should also be an official announcement via intranet by our press office.

Dear colleagues of the district office!
Mid-week, middle of the month, end of the year: 12.12.2018! Treat yourself to a sweet baked by colleagues with love and visit me from 12 clock in the foyer. I’m looking forward to you, honest! 🙂

So dear ones, everyone is welcome in the district office;) Who would like to come over! District Office, Wilhelm-Seipp-Straße 4 in Groß-Gerau.

Wednesday, 12.12.2018 from 12 o’clock to 17 o’clock!

On 11.12.2018, between 8 pm and 10 pm, the program “Black around the Clock” with Dieter Dee Baier will be broadcasting on Radio Rheinwelle 92.5 in Wiesbaden.

Dieter Dee Baier will refer to my website a few times my situation and the call for donations mention.

Thank you Dieter Dee Baier !!

To receive also in the Livestream under www.radio-rheinwelle.de

Dear Ones,

The last two days I have presented my situation and the call for donations at my information booth at the Hochheim Christmas market. THANKS to my best friend Iris Scharfenbaum, who spent the whole time, for hours, despite the wind and rain next to me!

THANK YOU, Iri ♥ !

Our sweet, petit Christmas market was quite well attended despite the bad weather (which at times was really a small challenge at times). Against mulled wine, any donation could be made. THANKS YOU LOVE THANKS to my dear friends Daniele di Domenicantonio and Christine Kreis for their effort !!

In the two days so exactly 550 € have come together! Many THANK YOU also for the sincere, warm words and wishes that were given by so many, lovely people !!

Also in the background you have continued to support me .. My heartfelt thanks! Your support remains constant … Again, there are names of colleagues, of old friends and acquaintances .. And again, there are also unknown names … you pave my way out of my opportunity to escape from this impasse … THANK YOU! This word remains too small and I still wish I had a bigger word.

• Katrin Puhlmann
• Freia Gärtner-Bender
• Bianca Zimmer
• Kerstin Presber
• Franziska Anonym
• Kathrin Reble
• Stephanie Reckling
• Michael Attenhauser
• Kerstin&Michael Van Well
• Adelheid Anonym
• Sabrina Rademacher
• Timea Kovacs
• Jazz á la flute – Isabelle Bodenseh
• Hanna Scheld
• Antonia Höhn
• Jessica Anonym
• Martina&Bernhard Anonym
• Matthias Anonym
• Ulrike Anonym
• Claudia Anonym

… today from 4 pm and tomorrow from 1 pm on the Christmas market in Hochheim!

There is delicious mulled wine directly from the vintner.

And cozy parlors in bad weather.

You will find me and my information booth at the Arte Moda, Frankfurter Straße 1. This is a colorful boutique, come browse! As well as a wine bar. Come on one or two mulled wine!

And visit me and my info booth! I’m glad!

Today, on St Nicholas Day;) a contribution has appeared in the Weinstadtjournal.

Thank you very much, Alexander Hartmann !!

Here you can have a look:

https://weinstadtjournal.de/?p=10515

(*translation:

You do not look at her. Not yet.

Katja Schmollack lives in the old town of Hochheim. She likes to live there. She finds Hochheim and the Hochheimers simply great. She loves the flair of the vineyards and the cozy streets … but she herself is in a dead end. She was diagnosed with multiple sclerosis (MS) almost four years ago. Since then, the disease is progressing steadily despite drug-related attitude. But there is a chance for a way out. There is the possibility of chemotherapy followed by autologous stem cell transplantation, which predicts a stoppage of MS to 75-83%.

This treatment is not supported by the health insurance in Germany, so she has to organize it herself. For this she needs 50,000 euros.

Here Katja Schmollack describes her story herself:

“Almost four years ago, on Friday, March 6, 2015, I received the diagnosis MS.”

How did it all start?

After Effects, which I had already done in 2004, but had dismissed, I realized in 2012 that I stumbled again and again, even if I deliberately concentrated. For the first time in September 2014, when I was walking, I could not lift my feet off the ground at times. As of January 2015, when I was walking with my dog ​​Miko, I noticed that after about 4km I almost lost control of my legs.

I suspected a mechanical problem or a blocked nerve and went to an orthopedist. The orthopedist referred me to the neurologist. When I had to paint circles with his feet in the air. In my opinion, I did it very well, but the neurologist noticed the control weakness and sent me to the radiologist for MRI.

Before this date, I ran again a huge round of doggy so that even a possible inflammation as a cause would be visible. I almost got into the MRT afterwards. In the tube, I found it relatively relaxed despite the volume and even fell asleep for a moment. In between, I was injected contrast agent.

Then I was asked to talk to the neurologist. These minutes have burned into my brain as if they were about to happen again …

She talked and talked, showed me the MRI images, talked about scarring on the nervous tissue typical of MS. And that some of these scarring are acute sites of inflammation, they see in the areas that have taken up the contrast agent.

This is typical in MS. MS, again and again this undefinable detail in their descriptions. Although MS was a term for me, I could not assign the word to my recordings. That’s why I eventually interrupted her with the question, “Aha, yes, but why MS?”

She then said in a calm voice that she knew nothing else, giving a similar picture. Then I started to cry – although I still did not understand it and although I find it difficult to cry in front of strangers. Something in me had understood it before my mind, otherwise I would not have cried. And at the same time my mind was waiting for the moment when she said, “Oh no, that’s why you do not have to cry, I meant it differently!” But that moment did not come. Instead, she handed me a handkerchief and said, “I’m sorry.”

I am then through the waiting room from the practice and can still remember every single face of the waiting patient. Everyone was staring at me. Everyone knew it. That’s how I perceived it then.

Then on the road I stood for several minutes and did not remember where my car is. It took me four hours to remember.

This is a moment you can not imagine. I think everyone experiences such a moment differently. And then follow months and years, in which you get to know each other completely new.

The next day I hammered on the door of my neurologist, who immediately referred me to the University of Mainz for diagnostics.

Read more here on www.katjas-chance.de)

Dear Ones,

Now a few days have passed, that I finally write something again. In fact, there was so much going on – I opened some great events and received valuable feedback; for that I have set up a small overview at the bottom right of this page under “Categories” – you can have a look 🙂 But I will also always inform you here in the blog text, such as regarding Christmas market. This is now this weekend and I have organized via ebay classifieds a stand and my flyers in A1 size print. The wave of support and sympathy does not stop, it is incredibly beautiful! For example, the copy shop Rent-A-Copy in Rüsselsheim printed the posters on good quality paper for free, so that the poster does not curl up – I was totally surprised, because I did not mention anything special … but the people there have evidently felt animated by my flyer to forgive me the cost. This kind of sympathy accompanies me in so many ways! No gesture goes unnoticed by me, even if I can not list everything here. It is also often “just” brief moments that then become valuable moments because they reveal support. So slowly, after an incredible 1.5 weeks, the situation settles with me and becomes mentally more tangible. How beautiful that is!

When we had cracked the € 20,000 :), many of you have emailed me, angeimst or have personally told me how great it is – WOW, that was great and it was soooo great that you are happy with me! THANK YOU for so much genuine and heartfelt sympathy, how beautiful that is! And it also showed me how eagerly you follow my page and how present my way is with many of you … I can not express how much that means to me and how good that feels. As I said, I would not have expected it and I think it’s so nice and I thank you all from the heart for you to accompany me!!

• Astrid Schneider
• Sven Scharfenbaum
• Nicole Anonym
• Alexandra Kleiber
• Stefan Engelhardt
• Sina Salmen
• Anika Anonym
• Brian Kowalke
• Hanna Englert
• Gaby Gottschalk
• Tamara Halfmann
• Elisa Wippler/Fennel
• Rene Erimit
• Sam Klinge
• Heinz Eisert
• Eberhard Beißner
• Anika&David Anonym
• Annette Bars
• Sylvia Willer
• Anna-Lena Wetzel
• Ina Hauser
• Nicole Kunz
• V&K Anonym
• Kim&Tobias Schneider
• Hedwig&Wolfgang Blümel
• Sibylle Sauer
• Ute Rödner
• Birgit&Heino von Stern
• Christina Kruse
• Dorothee Isselstein
• Barbara Weber
• Bastian Meier
• Nadine Naksoy
• Sylvia Vogel
• Wilfried Jolmes
• Eva-Maria&Dr.Volker Wetzel
• Ingeborg Holzner
• Peter Ramdohr
• Matthias Meinl
• Myriam Anger
• Jens-Eric Hoffmann
• Jessica Meguin
• Kristina Hauke
• Anja&Jürgen Sünner
• Florin Korn
• Gerhard Kremer

2 December 2018

Beloved, if you have any questions and / or if you do not know me personally and you want to get an impression of me … please visit me at my info booth on the beautiful Hochheim Christmas market, which is always worthwhile anyway. The Christmas market takes place on the 2nd weekend of Advent in the old town of Hochheim, on Saturday and Sunday, the 8th and 9th of December so you can find me at my stand in the Frankfurter Straße 1, right on the Arte Moda. On our Christmas market, you can enjoy regional mulled wine according to your own individual recipe – directly from the vintner.

I look forward to you all!

December 1, 2018

Hello my dears.

Lately, I have noticed the following again and again. If I am asked about the current donation status, it is often said, “Hey Katja, where are we grad?” … “WE” – that really feels so incredibly good. It is so valuable for me to experience that we walk this path together and that this is reflected as a fact in the vocabulary. That’s so real! I can hardly put into words what that means for me .. above all, it gives me a lot, very much strength. To experience that so many people walk this path with me … wow – that awakens an indescribably great energy in me.

Tonight I was in the audorial painting, for the first time. That was a very, very interesting experience. You paint without a head, just let go and paint what you feel without conscious motive. It turned out in the course of the image process that I had painted my MS – as a scary hand that reaches into the picture. The end of the picture, however, was that the hand is touched by a lot of positive colors, which I then even let pour from the top over the hand. What a good feeling that was!

Somehow it feels like your support too. It’s all a bit scary, but stem cell transplantation gives me a gorgeous new color in my life – and you make that color tangible to me.

THANK YOU!

I am always personally addressed to the current situation, how impressive my action is here … – I’m also very impressed! And then I’m often asked if it’s not too much for me to be approached – just because a lot of people are appealing to me. My answer is very clear: no, that’s not too much for me at all. I think that’s really nice. So I have opportunity to say thank you and / or to tell you my overpowering. I just like to share this way with you, that’s why there is this blog. And it really is not too much for me, I enjoy it all here to the fullest. Even if I was initially very occupied with partly stunned wonder – that was and remains simply a very, very nice and valuable feeling. I absorb it. I’ve written it before: when I’m in Moscow and I come to an unpleasant point – then all the encounters with you, no matter how small – and all the lovely comments – all your wishes – and all that financial support of which I take every penny as a statement – all of that will surely recap and simply be there as a force. 🙂

So it’s just really nice doll what’s happening here! Together we got almost € 18,000 in less than two weeks – WOW! One or the other has even donated twice – are you great! – Thank you very much! I keep saying it, my THANK YOU is too small. I’m defeating the MS thanks to you – at least the chances are really good that we’ll stop them .. 75-83% – this is my chance at life .. for future .. to continue to be happy – life is sooo fantastic and you allow me to keep it fantastic. I only have a “thank you” – it comes from the bottom of my heart !!

• Petra Treusch
• Sebastian Höck
• Ilona Schwind
• Karin Lange
• Dagmar Lindner
• Ingeborg Lindner
• Sabine Hoffmann
• Max Wroblewski
• Matthias Kringel
• Michael Ahlers
• Christian Beaury
• Patrick Habbel
• Katrin Götze
• Katharina Bretzke
• Sandra Schmidt
• Siri Anonym
• Christiane Emontz
• Musa Anonym
• Anna Engelmann
• Walabyeki Thomas
• Uwe Anonym
• Linda Schneider
• Luisa Liebtrau
• Alfred Pitz
• Robert Lindner
• Ilka Liebmann
• Simon Albrecht
• Irene Günz
• Nadine Anonym

27.November 2018

Hello my dears…

I would like to tell you how it came to this great website and the great flyers. For this I owe to special people who support me almost tirelessly until today.

During the creation and maintenance of this website, my best friend and longtime friend Christian Wulsch helped me, it is also his server on which we write and read here 🙂 Christian actually works as a doctor in Laubach – which does not stop him to constantly assist me with any change requests or problems that arise with regard to the website. Without him something would go wrong here all the time … I THANK YOU, Wulschi! Also for all the conversations that we have been conducting so deeply for years and for having been with me for so long and now.

The great flyers I have together with my girlfriend (and I think it’s so beautiful that I now call them a valuable friend) Evelyn Lo Schiavo designed – an artist who also works as a graphic designer. The cooperation with her was so harmonious, our ideas were born together more from the heart than from the head and I THANK YOU, Evelyn from the heart – for that you are just in my life and accompany me like a soul mate.

And the pictures – yeah, that’s a special story! For the pictures I thank Sebastian Lapke, an excellent amateur photographer from Frankfurt. Sebastian and I were in the same class together at the same elementary school. We lost sight of ourselves for many years. For the pictures we have seen each other again after a good 25 years! Sebastian has been Luke’s father for two days! 😉 And in spite of the tense time, which is connected with the fatherhood, he has taken the extra time for the pictures, I THANK YOU, Sebastian! So nice to meet you again, wow – especially at this time. And I am so glad that it is you who took the pictures of me – that makes my whole “journey” easy and gives good energy!

Here is a series of pictures that Sebastian posted on Instagram – I think that’s great, thank you, Sebastian!

THANK YOU!!

THANKS to the people who accompany and support me! With all my heart, a thousand thanks for your support! I’ll say it again .. you are paving the way for my existential chance to continue to enjoy this life … THANK YOU just is not enough for that – but it’s really coming very, very deep from my heart! It is a thought of the heart. A heartthanking for:

• Axel Landau
• Frank Anonym
• Monika Salzmann
• Karl-Heinz Schneider
• Rainer Burger
• Jennifer Schett
• Stefanie Blümel
• Petra&Pavel Belik
• Martin Baumann
• Renate Antony-Germann
• Dirk Schneier
• Beatrix Preß
• Gabriele Anonym
• Luisa Anonym
• Barbara Leonelli
• Daniela Rettig
• Maik Matthäus
• Talisa Schmidt
• Peter Neufeld
• Claudia Anonym
• Sarah Walter
• Petra&Thomas Hieronimus
• Sabrina Key
• Maike Anonym
• Markus Fischer
• Nicole Anonym
• Kerstin Twardawa
• Nadine Martin

November 25, 2018

Dear Ones,

Today I got the flyers .. some you will have already seen via Facebook or WhatsApp.

Some of you have already said that they would like to distribute some of the flyers, in markets, at work, in the circle of acquaintances – that’s what I like so much! Thanks a lot for this! I will also distribute the flyers on the Christmas markets and display them in some cafes, restaurants, wine bars in Hochheim, etc.

If someone would like to have some flyers to distribute, please feel free to contact me and tell me – I have enough and send them very, very much. You will find my e-mail address in the imprint.

Thank you very much to the supporters who have been with me for the last two days. There are again familiar names from the past, from my childhood and my youth … thank you very much! I read names of colleagues … thank you for supporting me !! And I always read names of siblings of friends … many, many thanks, that is so cordial, thank you! And they are names of friends of friends .. thanks! This word is always too small .. – And I read all these strangers names .. and also these strangers names accompany me … THANK YOU!

• Claudia Wittner
• Oliver Massag
• Barbara Roll
• Miguel Mendes
• Ursula Anonym
• Heike Behner
• Barbara Wolff
• Vanessa Anonym
• Romy Uhlmann
• Britta Germann
• Tanja Weinhardt
• Karin Anonym
• Rebecca Deimel
• Domenick Apel
• Eva Gemmel
• Martin Hutsch
• Daniela Süß
• Stefanie Witzke

November 22, 2018

Dear Ones, I was asked today what plan B is for this fundraiser … I answer: this fundraiser is already my plan B. Because my first plan to befriend the MS and to be optimistic unfortunately failed …
In fact, this is my only chance here.

Today I took the time to read through the wishes that leave many of you in the transfer in purpose …. you’re great! Thank you so much, that is so beautiful! 🙂

Dear Ones … Thank you very much for your support! You are paving the way for my chance, probably the biggest and the most important one you can get …. Thanks!

• Katharina&Dieter Czejka
• Lena Kopp
• Alexandra König & Jens
• Heidi&Wilfried Eberling
• Susanne Nowka
• Gabriele Weidenfeller
• Daniel Miltner
• Lena Kuhlmann
• Elke Halla
• Yannick Bals
• Jasmin Laubach

November 21, 2018

Some of you may have noticed that Katjas-Chance was not available yesterday. Oh man. There was a server move, which should take about 30 minutes …, which then became over 11 hours! I’m so happy to be online again!

Despite the absence, there were some people who were present yesterday and donated – thank you!

And also the cordiality did not stay out. Friends and work colleagues, even friends from the past, have sent me messages that really get under your skin. I know, I repeat myself in the meantime … but it’s just so beautiful, what a sympathy takes place on the emotional, on the heart level. I feel so close to you! To experience that you really want me to do it … that you want that so authentically and that you also accompany me on this heart level … that really overwhelms me. That makes me really flat. I do not jump and swing around and laugh and cheer – no, I’m really overwhelmed! I’ve become quiet, cry now and then and let it all affect me. If I am in Moscow and then come to a presumably unpleasant point – because this treatment is not a walk and it will certainly be tough – believe me, then that is the time when your words and your support will be back to be present again. You give me so much mental momentum now, I am so confident that I can do it … and your support and your words will accompany me all the way to Moscow ——- that’s just an incredible experience and a fascinating one beautiful trip that I’m experiencing here … THANK YOU! (… and again this word is too small ..).

• Alexander Bender
• Jakob Harder
• Tamara Hartmann
• Karin Zinkeisen
• Ilona&Frank Hildwein
• M. von Wolffersdorff
• Carmen Kaul
• Katja Badeck
• Kerstin Herzberger
• Feliza Cortés Bandes
• Michelle Kaltenbach
• Holger Lapke
• Philipp Czejka
• Miriam Putschar
• Nina Essel
• Susanne Krämer
• H.&T. Anonym
• Sonya Turki
• Denise Kühnreich

November 20, 2018

Dear ones, today you have realized over 1/5 of the required sum … I am so grateful to you! I would not have expected so much honest and warm-hearted sympathy. What I’m experiencing is beautiful. My dear neighbor, whom I had hushed so far only when walking, caught me last night and gave me such nice words .. then we were unarmed and cried a bit. I am touched by all this. I experience so many valuable encounters right now, so many precious interpersonal moments … People who can not donate offer their help. For example, a trained podiatrist told me that she would like to massage my feet to remind me that you have to keep getting up and moving on. That is their contribution to supporting me on my way. And I think that’s a wonderful contribution.

When I come home in the evening and pay the donations into the donation beam, I temporarily lose my composure. There are many names that I like to remember, such beautiful encounters from the past. People who have accompanied me for a while and now reappear in this situation. Names unknown to me, to whom I send dear thoughts and say THANK YOU from my heart!

• Mathias Radden
• Ann-Kristin Huth
• Thomas Stock
• Stephanie Leese
• Nazan Anonym
• Franziska Knaack
• Charlotte Pech/Deryckere
• Käthe Anonym
• Holger Schäfer
• Valerie Kastner
• Thorsten Kaus
• Nina Pulcher
• Alexander Gottlinger
• Sina Salmen
• Franziska Thierfelder
• Carolin Hoermann
• Karla Schaffner
• Piero Kittel
• Wolfgang Anonym
• Katharina Scharfenbaum
• Christin Stoye
• Tamara Anonym
• Markus Anonym
• Andrea Anonym
• Falk Anonym
• Yvonne Zitzmann
• Felix Braun
• Lisa Wüst
• Stefan Buch
• Ulla Bitsch
• Anna&Hauke Wetzel
• Nicole Kunz
• Ramona Schwendner
• Ingeborg Holzner
• Lucie Sauerbrei
• Maria Wolf
• Caterina

19/11/2018

I want to thank all my heart for all the lovely people who are fulfilling my chance! I still have not found a word that is bigger than THANK YOU … otherwise I would use it. It’s overwhelming …. I read names from my elementary school days, so people who stick in my photo albums and with whom I associate memories – but I have not seen since years ago .. I wish I could sit down with you at a table a beer or wine and personally thank me .. when do we have a class reunion? That may be the next project 🙂

I read so many names from my team from work … I love you, really! It’s so nice to be part of a great team every morning – and now you just stand behind me and support me on my journey … thank you!

Here are names that were or are friends in my life … people who have accompanied me and who are obviously still accompanying me .. What is this life full of! And beautiful.

And, dear ones … there are names that I do not know. So many names that I do not know … It’s certainly friends or acquaintances of friends or acquaintances. Or maybe even strangers to me. You, dear ones, with whom I may not even have exchanged a word … Wow! Thank you, thank you … for supporting me, too.

I can not put into words what’s going on. But THANK YOU … and I really wish I had a bigger word.

• Katharina Harder
• Helene Harder
• Moritz Muck
• Verena Ems
• Christian Braumann
• Jasmina Choteschowsky
• Johanna Schneider
• Daniela Braumann
• Aileen&Felix Überschaer
• Theres Rommel
• Sebastian Kohl
• David König
• Michael Kloth
• Berit Stolbinger
• Stefan Anonym
• Sarah Doerfeld
• Daniel Krell
• Brigitte Borutta
• Marion Clemens
• Julia&Nico Schneider
• Umair Ahmad Bajwa
• Jennica Surauf
• Christina Anonym
• Sebastian Lapke
• Johannes Römer
• Caroline Anonym
• Sabina Anonym
• Petra&Harald Robok
• Sören Schuster
• Melanie Anonym
• Feliza Cortés Banda
• Jan Fetzer
• Sina Senßfelder
• Ann-Kathrin Gundermann
• Lisa Eiserloh
• Cornelia Unger
• Katrin Klinge
• CacS
• Fabian Huwe
• Agathe Rylow
• Peter Strozyk
• Anne Hock
• Nicky&Curtis
• Angela Reitmeier

Hello! Here news is posted! It is always worthwhile to take a look here on the blog 🙂 Today is the very first day on my page, the flyer and the donation appeal go online 🙂

November 18, 2018

Dear ones … it is amazing. I have already received so many donations … I am partially speechless!

This is a very special time for me. And no matter what … this way has already paid off here. I did not expect so much sympathy. Also your personal comments and wishes, many thanks! I can not put into words what it feels like. I realize that I’m not alone – I realize that this world is beautiful. That gives me an incredible amount of power! Because even though I’m unbeatably optimistic and happy, there were still a moment or two that I thought I could not do it. The mountain seemed much too high and the way way too far and when I went into it, there just was not enough energy. But with all this support from so many people, I realize that I do not have to do it alone. And that means so much to me! Thank you very much! To all of you, honestly, to each one. We are all in the big wide universe on this little blue planet, so somehow at the same time in the same place and I feel so close to you. Many Thanks!

My thanks go above all to:

• Agnés Wintermeier
• Jessica Knaup
• Janine Lindner
• Alexander Pohl
• Thomas Fischer
• Melanie Klein
• Melina Ottermann
• Alexander Magiera
• Sandy-Alexander Brenner
• Martin Stumpp
• Stefan Mayer
• Jeanette Harder-Herve
• Petra Baar
• Christian Scholz
• Tolga Özkol
• Karolin Bertram
• Volker Budde
• Anna Kretschmar
• Stephan Vogt
• Jonathan Wangler
• Ilona Jahnke
• Erik Frischkorn
• Iris Scharfenbaum
• Christiana Estl
• Jessica Schmitt
• Alex Anonym
• Marina Roßkopf
• Marc/Inga Schäfers
• Abdulrahman Rashwani
• Carola Hübner
• Robert Hertel
• Katja Anger
• and an anonymous donor … but I know who she is;)

From the heart people: THANK YOU !!!!!!